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Does anyone have Hemocromatosis and??

Blood Cancers & Disorders | Last Active: Jul 15 11:31am | Replies (24)
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@kathiegeary

C. Also, thyroid meds for 48 years, thyroid isotope. Very high Ferritin but doctors not concerned. Colonoscopy, was good but get constipation- have both external and internal hemorrhoids that bleed but again told no worries. Have diverticulitis and diverticulos. Not feeling okay, all blood work recently taken was good but discomfort, nausea too. Now taking Linzess. Aunt passed age 71, not blood relative from hematosis, now her granddaughter, age 36 recently diagnosed. Why do I feel so unc

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Replies to "C. Also, thyroid meds for 48 years, thyroid isotope. Very high Ferritin but doctors not concerned...."
Lori, Volunteer Mentor | @loribmt | Mar 20 1:13pm

Welcome to Connect, @kathiegeary It sounds like you’re getting the ‘all clear’ from your doctor even though you have consistently high ferritin levels. You know your body better than anyone else and right now you’re not feeling well. You may need to be your own advocate to push for answers for why your level is so high.
Untreated iron overload may lead to complications like heart failure, diabetes, cirrhosis of the liver, cancer, and other serious health conditions.

Has your doctor run any tests to find the cause of your iron overload? You mentioned your recent blood work was good…but did you still have high ferritin?

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