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@katgob

Lori, I really am so grateful to have found the Mayo Clinic. Your sharings have eased my journey. Knowing the COH and Mayo follow nearly the same guidelines is wonderful.
I met with my new MO yesterday and was happy my transplant Dr called her to discuss my care. The NP I spoke with had worked in the transplant area of COH. She has only met me twice, but after talking with me her thoughts and words were hopefully. Attitude is vital. There will be ups and downs, but staff is there right with you.
I will check your list over. Both the NP and Dr said COH is a national leader. One of a number of top transplant hospitals.
I got a list, but it is an old typed up
one copied over and over. Funny.
At what point shall I share my journey?

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Replies to "Lori, I really am so grateful to have found the Mayo Clinic. Your sharings have eased..."

Please feel free to share your journey any time!! You’re sharing it now, actually. ☺️ As you get into the process, there may be some days when, frankly, you’re just too tired to give a hoot about talking to anyone. But when you’re ready, you can share whatever you’d like.

I started a discussion a couple years ago just for BMT/SCT stories so if you’d like to post in there, that would be a perfect spot! I’ll give you the link again.
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
I’ve said this before to others but its rings true for all of us going through a bone marrow transplant. Our transplant teams become our new family. They are so compassionate, patient and caring. Learn to trust your doctors and your team. They are your people! They’ve seen it all and nothing is new for them. So don’t be afraid to ask questions, tell them of any concerns you have. They want you to be as comfortable as possible and will do their upmost to make sure you feel secure and at ease.

And I’m here for you anytime to answer questions or to give you some moral support. You’ve got this! 😉