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@repairgirl

Hi Christyann, I am so sorry to hear that your son at a young age is suffering so bad with this condition. He is way to young to be this ill. I believe I have had it most of my life but the doctor believes it came from Chemo when I had two forms of cancer. He believes the bone marrow was damaged. I do believe what he is saying though. I do suffer with several issues that he has but not at that extent. I do not want to take biologics because I had such a severe reaction to Chemo after the 12 time. When I looked that up, the biologic the doctor wanted to give me I decided to stay with taking allergy pills twice a day. I also get all the systems he has with the rashes on my arms, torso, back etc..and the burning pain He said I could take them 3 times a day. I am on so many medications already. My heart goes out to your son and yourself. This is not a pleasant disease. I do have acid reflux disease, intestinal issues, I have had anemia from the cancer treatment which is under control right now. I also have spinal injuries from many accidents. I lose feeling in my hands and especially my feet. I hope and pray they can help your son, this is so heart breaking to me to hear of how young your son is with this condition. Please keep me posted on your son, I will be thinking of him!

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Replies to "Hi Christyann, I am so sorry to hear that your son at a young age is..."

Hi christyann, like your son I am now convinced I have POTS, I didn't know what it was until I looked it up. I suffer from all the systems. I have tachycardia, dizziness, vertigo, blurred vision, palpitations that wake me up at night and I also get them during the day. The list goes on. I never realized all these symptoms are related.