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My results after 1 year of Evenity

Osteoporosis & Bone Health | Last Active: 3 days ago | Replies (70)

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@lauratys

I did 11 months of Evenity and skipped last month as I had very bad joint and muscle pain that I have never had. But you do need to take a med after Evenity or you get what they call a ‘rebound’ effect and may be worse than when you started. I didn’t want to do Reclast as after several months of pain from Evenity I wanted no meds but didn’t want to lose gains. I also had very small gains in hips but significant gain in spine. I tried Fosomax as bisphosphonates are recommended following Evenity. Fosomax brought on pain again so now am taking once a month Actonel. It is better for me so far. I’ve been taking it for 6 months. I hope this helps you but do something as you don’t want to lose gains you have from Evenity.

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Replies to "I did 11 months of Evenity and skipped last month as I had very bad joint..."

I certainly understand the pain you experienced. I go in 2 days for my 9th pair of injections and each month my pain escalates. I have extreme difficulty even getting out of bed in the morning. What is worse is that I have been on opioid paid relievers since 2001 as a result of cervical spine surgery and 12 vertebral osteoporotic compression fractures and due to Evenity my pain level is at least a 9 out of 10 every single .owning until I put a heat pack on which covers my neck, shoulders, and goes all of the way down my back.
My T Score when starting Evenity was -4.2 so I am desperate to do anything which might improve my bone health even a little. My nurse tells me that the pain is a good sign because it means the treatment is working. I certainly hope so. I'm not fooling myself, not anticipating a significant change but any improvement may mean the difference between a hip fracture or not. My goal is prevention of ANY fracture in my future.
What I do not understand was your decision to stop the Evenity treatment with one pair of injections left. If you were already in pain, one more month wouldn't have made so big a difference in your pain level but the trials indicated 12 months of treatment for a reason and you cut yourself short. I do hope that you maintain your results but now you'll never know how much better your results could have been had you gone through the entire treat plan.