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Does anyone have Hemocromatosis and??

Blood Cancers & Disorders | Last Active: Jul 15 11:31am | Replies (24)
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@timt347

I have a relative with hemochromatosis. It took years and years to get a diagnosis. He was quite annoyed that he ended up with joint pain and organ damage before finally getting treatment.

Since the treatment for hemochromatosis is phlebotomy, you might consider donating blood on a regular basis as a precaution. But be sure to tell your doctor what you are doing so that he is not confused by any changes in symptoms or test results as a consequence of blood donation.

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Replies to "I have a relative with hemochromatosis. It took years and years to get a diagnosis. He..."
wendy517 | @wendy517 | Mar 22 10:35am

I used to donate regularly for many many years before covid, then it started rising after I stopped donating. They came to conclusion it was Polycythemia vera. Year later had bone marrow biopsy done and definitively showed NO blood cancer at all.

We're going to start looking at different types of arthritis. Plus do genetic testing for Hemocromatosis.

My iron level and saturation went High after I had 5 therapeutic phlebotomies. I questioned it and was shot down it was nothing to worry about 🤔

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