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My results after 1 year of Evenity
Osteoporosis & Bone Health | Last Active: Oct 21 1:38pm | Replies (53)Comment receiving replies
I took 12 months of Evenity. Toward the end of the treatment I developed PVCs (heart palpitations), which stopped about 3-4 weeks after my last treatment. When I started exploring the options for "what's next", I read much about Prolia and recast. Both of those options sounded terrible to me, and I opted not to continue with any medication. When I asked my Dr. about going to alendronate instead of Prolia or Recast, her response was "that is not the protocol". I didn't feel like I had great response from the Evenity in my hips, which is where I really needed it, and decided I would continue surveillance with a DEXA scan each year, and make future decisions based on the results going forward.
Replies to "I took 12 months of Evenity. Toward the end of the treatment I developed PVCs (heart..."
Good evening @m40. I have been focusing on the response you received that alendronate is not the "protocol". Sure wish your doctor had explained exactly what she meant. All I can offer is that my endocrinologist at Mayo recommended alendronate after two years of Tymlos, which is also a bone builder. I am now at about 16 months without any side effects or unsuspected reactions. I will see how everything has held up after DEXA scans in August.
I interpreted your statement to imply that your surveillance does not include medication. Did I read your post correctly?
May you be safe, protected, and free from inner and outer harm.
Chris
Hi @rn40. You do not state whether you had gains from Evenity or not. If you had gains the basic idea is that you have to take an anti-resorptive med to keep those gains. Evenity is not known to cause a terrible rebound effect like Prolia but you do still lose your gains in bone density without a follow up. It's unclear to me how long that takes but I'm guessing it starts pretty soon after you stop and continues until all those gains are gone.
There was a major study showing that Evenity followed by Fosamax helped prevent fractures. It is a standard protocol.
Perhaps your doc mixed up what you need as a follow up to Prolia? Fosamax is not thought to be strong enough to be a good option to follow Prolia. Reclast is thought to be strong enough for that situation. But for follow up to Evenity, Fosamax should be fine.
I don't recall seeing anywhere that Fosamax could not be used as an Evenity follow up.
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I did 11 months of Evenity and skipped last month as I had very bad joint and muscle pain that I have never had. But you do need to take a med after Evenity or you get what they call a ‘rebound’ effect and may be worse than when you started. I didn’t want to do Reclast as after several months of pain from Evenity I wanted no meds but didn’t want to lose gains. I also had very small gains in hips but significant gain in spine. I tried Fosomax as bisphosphonates are recommended following Evenity. Fosomax brought on pain again so now am taking once a month Actonel. It is better for me so far. I’ve been taking it for 6 months. I hope this helps you but do something as you don’t want to lose gains you have from Evenity.