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LDN dosing for fibromyalgia and ME/CFS

Fibromyalgia | Last Active: Oct 9 10:56am | Replies (27)

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@emo

Thanks for this; it’s so helpful to have the resources gathered together. It’s been a while since I researched and I’ve not seen the POTS article, so thank you.

I wish someone would do larger studies, so it wouldn’t feel like this hidden thing. Like you, I’m lucky to have a PCP who had experience with it and was comfortable prescribing it. Some specialists get so weird about prescribing it or a compounded medication.

I take it, but it’s helped most for fatigued and not as much with pain sensitivity. I have central sensitivity syndrome, HSD, POTS and fibromyalgia and an inflammatory arthritis, too many things. I’m glad you’re finding it helpful.

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Replies to "Thanks for this; it’s so helpful to have the resources gathered together. It’s been a while..."

I'm so glad my post was helpful. The POTS article caught my eye because my niece has POTS. I'm sorry you have so much to battle with. I'm glad the LDN is helping with the fatigue, but it's too bad it's not giving you much relief with the pain.

I too wish there were larger studies. Some of the doctors I see for my various ailments have heard of LDN but have dismissed it because there isn't enough empirical evidence available. Maybe a groundswell of real-world evidence will eventually convince them. One can only hope.