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White Matter Disease

Stroke & Cerebrovascular Diseases | Last Active: Mar 29 10:51am | Replies (51)

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@pb50

By all measures I’m doing fine. I am waiting for the 28th to get a read out of my neuropsych testing and then a visit with neurologist on the 11th. I think the white matter ischemia is interesting but not a major influence on the deterioration of memory - in my case it’s really more word retrieval than memory per se.

They say if you don’t remember where you put the keys that’s frustrating. If you don’t remember what the keys are for, that’s likely on the dementia path. So far, I remember what the keys are for 🙂

Thanks for asking. I find that once you disclose that you may have MCI, conversation with friends becomes stilted and awkward. You’d think it was contagious. 🙄

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Replies to "By all measures I’m doing fine. I am waiting for the 28th to get a read..."

do you mind me asking how long you were on waiting list neurologist.

Dear pb50,
I have had PCS for a long time (7 years). But I have had a sense of humor since I was born. After I disclose that I have PCS if I sense any awkwardness in the conversation, or if I say something that is not quite right, I smile broadly and say “Sorry Brain Damage”! That usually gets them laughing and the conversation can continue. Hopefully if you can accept it and move on, that gets them to accept it and move on. It has worked for all of my friends and new acquaintances and when they smile hopefully, you and hopefully they can move on with the conversations.
Good Luck! Let us know if it works for you.

Well I'm forgetting lots of important stuff