Best wishes for everyone who reads this.
I follow but rarely comment.
I had biopsy in June 2023. Really didn’t know what to expect. Not one bit apprehensive.
During the 2 core sample, the surgeon said you will hear a little click, thus it clicked once for each sample. I asked what was the click, and he said he had inserted two titanium markers.
Being allergic to many metals, including titanium, I gasped, I am allergic to titanium. It is well noted in medical records, and always boldly stated on every questionnaire or survey.
Well that oops has left me sensing a tiny hot pin prick all the time. Every day.
Two weeks later, I had a high resolution abdominal MRI with contrast. With metal allergies noted, contrast should never have been ordered. Yet at that MRI with Gadolinium contrast, intense joint pain began before I came out of the machine, and I was unable to sit up and stand without assistance. The staff just pushed me through the door, advising to follow exit arrows. Thought my knees would explode, thumbs throbbing, every old injury came back to life. I spent the remainder of summer on a lot of bed rest.
Through this blog I discovered gadolinium toxicity, and joined a support group.
It is still painful. I had reported the reaction on MyChart last summer. The surgeon & oncologist have had a rather flippant attitude about these allergic reactions.
I have been diagnosed with ILC: however I am choosing alternate, holistic, immunotherapies. I have decided no more PET, or other imaging with contrasts or radioactivity. My choices.
Also refused ribociclib, no evidence it does any good for ILC. I have been on Letrozole since late July 2023. Recently, I have decided on an odd day only dose after reading its Safety Data Sheet. I do not take any other Rx meds.
I manage diabetes with organic raw veggie & fruit juicing & salads, which also ended 40-years of IBS. I am focusing on detoxing metals, and choosing plants that are proven to cause apoptosis, autophagy, and anti-angiogenesis to abnormal cells.
As I am rereading this, I feel the titanium clips taunting me.
Not sure I want them dug out and risk releasing cells that could become something else.
OBTW, the thickened mat of ILC is greatly diminished since June 2023.
I choose not to fear it.
Peace and comfort be with each of you. — Linda T. G.
I must admit I was shocked to read about all that you have been through. My heart goes out to you. Omg, it does give rise to thoughts about what I have allowed to be done to me, but I was lucky with no bad results. I have Clips in my breasts. I did not have a reaction thank God, but to do that without telling me? The trouble is we don't know the questions to ask.