Faced with decision to have Bone Marrow Transplant or not

Posted by ajheustess @ajheustess, Aug 10, 2017

I am 67 year old female faced with a decision to have a bone marrow transplant or not. Please offer advice as to recovery and how it worked for you. Thank You, I need all the help I can get

Interested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.

Cheryl, Volunteer Mentor | @cehunt57 | Mar 1 6:34pm

In reply to @omioften10 "It is so helpful to hear from you! Next Friday I will have the first bone..." + (show)

@omioften10 I’m a former Wisconsinite. I know a bit about transplant, but not bone marrow transplant. I have respect for Mayo Clinic in Rochester. I have a high regard for @loribmt. She knows a lot about this topic and has lots of experience. I’m a firm believer in prayer. I will join you in praying for wisdom and also God’s best for you in your current situation.

omioften10 | @omioften10 | Mar 1 6:43pm

In reply to @cehunt57 "@omioften10 I’m a former Wisconsinite. I know a bit about transplant, but not bone marrow transplant...." + (show)

Thank you for your prayers. I will be in prayer for you also.

jrwilli1 | @jrwilli1 | Mar 2 7:05am

In reply to @omioften10 "I was recently diagnosed with AML. I am just completing my first 22 day chemo cycle..." + (show)

Yes, a bone marrow transplant is the only cure is what we were told as well. My husband just had his one year post transplant. And yes in spite of all his ups and downs he says he would do it again. He is also 100% donor. Hang in there. Somehow looking back I forget some of the craziness. It seems time flew. 🙏

Lori, Volunteer Mentor | @loribmt | Mar 18 8:35am

In reply to @omioften10 "Thank you so much!" + (show)

Hi @omioften10. I just wanted to check in with you to see how your bmbx turned out! This was an important first biopsy after treatment so I’m hoping you got some good news. Any word yet??

omioften10 | @omioften10 | Mar 18 10:22am

In reply to @loribmt "Hi @omioften10. I just wanted to check in with you to see how your bmbx turned..." + (show)

Good morning, and thank you for checking in with me. My biopsy shows I am in remission, " best possible outcome" according to my doctor! I am so happy.
Today I start my second round of chemo.
Next monday I will meet with my leukemia specialist to discuss pros and cons of a bone marrow transplant. I am 74, and praying for wisdom.
I am so tired most of the time. Ida

Lori, Volunteer Mentor | @loribmt | Mar 18 10:51am

In reply to @omioften10 "Good morning, and thank you for checking in with me. My biopsy shows I am in..." + (show)

Good morning, Ida! Yessss! Happy dance for you!! Congratulations with being in remission. I know that feeling!! Phew. The 2nd round of chemo should ‘seal the deal’ and keep you safe while decisions are made for the next treatment Then you and your doctor can take things from that point going forward. Fingers crossed to go ahead with the transplant. 😉
You’re in the best of hands with the team at Mayo so hang in there and keep me posted!! I’m heading there myself in a couple of weeks for my 5 year followup! That’s a biggie!! Too bad our appts didn’t overlap I’d meet you in a lounge somewhere!

What a lovely photo. Is this your handsome husband, Ida? You make a beautiful couple.

omioften10 | @omioften10 | Mar 18 12:46pm

Thank you! The picture is of my husband and me at our 50th wedding anniversary celebration almost 3 years ago.

Lori, Volunteer Mentor | @loribmt | Mar 18 6:40pm

In reply to @omioften10 "Thank you! The picture is of my husband and me at our 50th wedding anniversary celebration..." + (show)

Belated congratulations on that big anniversary. My husband and I will be celebrating our 50th in May! The 4 of us young people could never have imagined what the ‘for worse’ portion of our wedding vows would entail, right? To have made it 50 years together shows the ‘tough stuff’ you’re made of…this is just one more little bump in the road. ☺️

Lori, Volunteer Mentor | @loribmt | Jun 2 9:43pm

In reply to @omioften10 "Good morning, and thank you for checking in with me. My biopsy shows I am in..." + (show)

Hi Ida, I just wanted to check in with you to how your meeting the leukemia specialist went. Did you discuss having a bone marrow transplant?

rayj | @rayj | Jun 12 1:37pm

In reply to @loribmt "Wishing you well on your biopsy. It’s an important one. It will let your doctor know..." + (show)

Going for SCT evaluation on Friday 14th. Three rounds of chemo. My K/L has been reduced from 43 to 4. Red blood cells are .1 below min normal. Scared to death of side effects in SCT.

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