Hi Wendy, You’ve sure been through the wringer with all of your symptoms and no firm diagnosis yet. It was great news to see your BMBX showed no sign of bone marrow issues or cancer so that’s a plus. But that good news is still overshadowed by the fact that you sense something is going on. Keep being the squeaky wheel! You know your body better than anyone else.

A timely article was dumped into my personal mailbox today. I subscribe to a medical site, uptodate.com and this article popped up about Hereditary hemochromatosis. This is just the opening line but if you have HH in your family this may warrant a look-see to find out if you’re one of those luckily members on the family tree…

“Hereditary hemochromatosis (HH) is most commonly due to homozygosity for the C282Y variant in the HFE gene. HH is a disorder in which increased intestinal iron absorption can lead to total-body iron overload.
The HFE C282Y variant is quite common; however, not all individuals with this variant develop iron overload.” (HFE-Human homeostatic iron regulator protein)

Since you mentioned there is a history of HH in your family, having blood work done for genetic testing sounds like a good next step for you. We don’t all neatly into the ‘trouble shooting guide’ for then human body. Oh, wait, we didn’t come with a manual! LOL.
Probably too early yet, but have you heard back about the results of your other scans from Friday?