Connect
Comment receiving replies
You have to find a new neurologist if u have those symptoms!!! Did they look at your bloodwork and do a lumbar puncture (LP) to check your CSF. The CSF should be examined because it can flag neuromuscular diseases. when I asked my neurologist if he was seeing Covid stuff..he said “ya weird stuff”. I am a RN. Not happy with no diagnoses. When I got Covid I hardly had a sniffle but had fever,loss of taste and smell,severe muscle pain and brain fog and major fatigue. The fatigue got worse after I recovered (I returned to work on day 16) had what I told my co-workers as a weird feeling in my legs. I also had strange sensation as if my brain did not know where my legs were (proprioception problems).
I went to a back specialist cause I thought it was my back. He was great and ordered a brain mri. I got it done privately cause there was a 2 yr wait. Live in Canada. Cost me 900$ and the results were innumerable white matter hyper intensities. About 4 months after the twitching and burning started. Went to neuro again and he was an asshole and did nothing. I have tried many supplements etc. going to get a second opinion soon. There are bad and good drs just like in any other profession. Find a GOOD one.
Replies to "You have to find a new neurologist if u have those symptoms!!! Did they look at..."
I'm having weird sensations in my legs as well. I just had an mri for my back by a spine Dr. I will get those results on the 28th. I also have an appointment with the neurologist on the 25th. I have muscle discomfort, like tight leg muscles, I have the sensation that my calves are being massaged but it's not pleasant. I have groin pain, heavy legs, and cramping sensations, cold temps are the absolute worst I'm on a walker right now. I'm 56 and my life has changed dramatically. I went to the ER and came out with gabapentin which I am on until I see my Dr. Mornings are the hardest because I wake up at three and wonder if my legs will hold me up. I had covid and went for an infusion, I did not get the vaccine.
I hope and pray you get an answer for what you are experiencing.
Connect
I have not had a lumbar puncture yet,but I have had all of the other tests.I have been to 4 neurologists.All of them have been awful.I am thinking all of the good specialists retired during the pandemic.I had an infectious disease doctor check for Myasthenia Gravis.One antibody for that specific test came back borderline.I worked in healthcare as well so it is frustrating not having a diagnosis.I had an extreme reaction and than all the symptoms started setting in.I saw that one long covid clinic is treating patients with mestinon the same drug they use to treat MG.I guess to get the muscles and nerves signaling properly again.I just think the only thing that could have brought this on was covid because my symptoms are so bizarre and no specialists has seen anything like it before.At the beginning I can only compare it to a human vegetable.I could not swallow,go to the bathroom walk.etc.One doctor was giving me rounds of antibiotics,antifungal,antiparasite and nothing was helping.It was the virus attacking my whole body.I am sorry that you are going through this as well.I hope you get answers soon and feel better.I don't know about Canada,but here is the US it is like Covid never existed.It is crazy because I was healthy and my life is completely changed because of this.