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BFS or ALS?

Brain & Nervous System | Last Active: Apr 9 4:15pm | Replies (20)

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@steige

I have also been twitching all over (toes to face) the last three weeks. No other symptoms though. I can’t see a neurologist until June. This has me so worried that it is hard to carry on with everyday things. I’ve always been healthy. How are you doing now??

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Replies to "I have also been twitching all over (toes to face) the last three weeks. No other..."

Hello!I have had muscle twitching all over for about 6 months now.I have been ill for over 2 years though.No doctor can figure it out.Did you happen to get covid?My symptoms came on after an iron infusion/possibly covid.My other symptoms are trouble swallowing,trouble walking,loss of muscle in face,trouble smiling,chewing amd talking. My eyes are so squinty and dry and can barely be in the sun.I also have weakness in my diaphram/sternum area where it should be pushing the belly down.It is like the strength just dissapeared.I also get the signals that I am hungry,but don't have the sensation of food going down on the belly or a full belly.It is basically like the sensation went away.I also have big inflamed upper arms and legs.The only thing I have had since my 20s is thyroid disease and I never took any other meds besides synthroid.I do not smoke,drink or do drugs.I was healthy and exercised all of the time.The only thing I can think of is that I became anemic from heavy periods and maybe covid got me before the infusion set in or maybe after.I guess an iron infusion lowers your immune system making it harder to fight off any virus or infection.Some of my symptoms are just too weird and the only thing I can come up with is Covid.Do you have any other symptoms besides the twitching?The specialists I have met with have no idea.One neurologist told me maybe a metabolic muscle disease,but I asked him if that would cause slow speech,swallowing and chewing and he told me no.The only diseases that come up when I put my symptoms in are ALS,Myasthenia Gravis and LEMS.Maybe I have a new Autoimmune Diseases brought on by Covid.The Doctors don't have a clue about covid.