← Return to Myotonic Dystrophy type 2
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Bones, Joints & Muscles | Last Active: Oct 15, 2016 | Replies (20)
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Replies to "Welcome to Connect @gailfaith. I'm so glad you posted As you know myotonic dystrophy type 2..."
I was just diagnosed with the gland issue and my first appt with an Endocrinologist is not until Jul 29!
As far as the MD2, until I went to Mayo all the neurologists I saw before I moved to a retirement community said I could never get better, only worse. At that point I could still downsize my house and put the house on the market and move. After I moved here, still no one put a name to my weakness, hence the trip to Mayo with my service dog. As soon as I got back home, I started with a physical therapist within a week and we get along great. I see him (Brian) once a week and we have a ball together and that motivates me no end to work out. At first Brian said he could keep me out of a wheelchair and for over a year walking was not a problem. Then last a July i had a "drop attack" as they are known, while out for a walk and I landed in the grass unhurt. A drop attack can be caused by cardiac or brain issues, but at least for me, the first part of the fall I have no idea what is happening until the second half of the fall, when I am FULLY aware of what is happening. The second attack was the day after last Christmas at a friends home, when I fell down the stairs, and had a concussion. Between Christmas and Easter, I was struggling with the concussion symptoms and due to unrelated problems with Medicare, I had to stop therapy. During that time I started using a walker so I could walk more normally, and now without the walker my gait is poor. So I wouldn't encounter a worse injury, they inserted a pacemaker this past April. So far so good.