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BFS or ALS?

Brain & Nervous System | Last Active: Oct 7 7:03am | Replies (22)

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@j77

Hi Alecia!Were the Doctors able to give you treatment for your issue?I have alot of twitching and spasms along with muscle weakness.The neurologist told me it is not ALS,but I am still not sure.I wonder if part of my symptoms might be similar to what you have.I just had Genetic testing done.I am waiting to heat back from the doctor.

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Replies to "Hi Alecia!Were the Doctors able to give you treatment for your issue?I have alot of twitching..."

I have also been twitching all over (toes to face) the last three weeks. No other symptoms though. I can’t see a neurologist until June. This has me so worried that it is hard to carry on with everyday things. I’ve always been healthy. How are you doing now??

Hi the only treatment I received is baclofen for the muscle spasms. I only take it if I absolutely have to because its not safe for me to take really. The last time I took it I woke up on the couch and had absolutely no clue what day it was, why I ended up there, or anything I had done after the baclofen kicked in. I had a friend there with me so I was able to take one because I needed it. Apparently they fed me and I was talking and everything but I have no recollection of it and I slept for 14 hrs. At least the amount of time that I'm sleeping is decreasing. The first time I was not able to function for 3 days. I did not sleep the whole time but I was not able to do anything constructive and slept the majority but I also got out of bed and put a gallon of milk in the cupboard but did not open it and get a drink. I hope you find some answers.