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Arachnoiditis: Trying to find a specialist
I am from North Carolina. And out of the 15 doctors I have seen since 2015 have said that arachnoiditis is rare and you do not have it. But no one is listening to my symptoms. Received a shot in my L5. But the doctor missed and hit the nerves while injecting Since that date I went from being able to walk to not at all. I am now in a wheel chair. Pain is in both legs to toes. None of the pain meds that my pain management has prescribed touches the pain. I have jerks in both of my legs. Weakness. Tingling and numbness in feet. My right eye has lost vision. I sweat on the top of my head for no reason. And out of the 3 MRIs I have had none have been done on the lumbar wth contrast. The pain gets worse week by week and no luck on finding a doctor. We are willing to travel if necessary. Please help.
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I can not find a doctor who will read any of Doctor Tennant Medical information especially the Harmone information for pain.
First place even the top pain doctor at the mail says it can't hurt you or does it harm you and it may work. It's been around for years Nasa uses it for the pilots coming back from space after a year to get their body back in shape I should does increase blood flow which reduces inflammation and reduces pain. I've spoken to this doctor who promotes some of his machines and he claims that he can cure it and he'll give you a 45-day trial. If you don't like it get your money back. I am going to do it cuz I have nothing to lose and so do you. Look into it. Healthy wave mat I think it's called is rated High and the prices like eight hundred bucks. 45 day free trial. I'm ordering it tomorrow and after 45 days I'll know if it's worth it. We must try things out of the box as long as it's not dangerous. It's far better than surgery or pills or injections. If you have trouble looking up I'll get you some more detail of where to go. If you look up pemf you'll go to a number of different sites and comparison reports. Don
I was told the doctors don't recommend it because it's not covered under Health Care or any insurance. Magnets I've been curing and helping people with pain for years cuz I have a friend that sleeps with a magnet blanket. My next door neighbor who's a straight guy and is really conservative as well as an electrical engineer was so skeptical over this mat and now he swears by it. I don't know if it's going to be good for a AA but it can help pain hopefully and that's what it's all about. I'm just letting you know what I'm going to do and I would encourage anybody else to try to see if we can get some kind of consensus if this thing is any kind of help. Even. Tennant is offering a machine and I don't know what it is.
I'm sorry, I called it a procedure. Did you mean he has never treated anyone with AA? If thats right can you wait for Dr. Tennant to email you or there are phone numbers to call him. There is no such thing as "curing the disease" other wise people with AA there will be a line at the door. If he said "cure" may I suggest "run". Please, listen to your dr. at Mayo, PLEASE. All this stuff is just making people rich or trying to. It's only a suggestion. It's up to you.
I know all about the fact that you cannot cure it at this point but to prevent the pain from getting worse without entering my body through surgery or injections it's something I have to look into. They are using things and other Mayo Clinic such as the scrambler or tens and so I'm thinking out of the box and I am taking some of the medical ingredients that he's recommending such as vitamins and other stuff that is making me feel a lot better plus of course exercising. Mayo I think seriously caused by disease with a severe spinal leak that I had last year but what disappoints me is that they never try to diagnose me and even when we finally found out when I have there was nobody who said that would mean explain your condition except only one thing. Stimulator. If you listen to doctor tenant you said you not do the stimulator unless you're in later category which I am not. I'm going to try to prevent that category I hopefully what I'm doing and maybe this mat will help. Thanks for thinking of me as I think of you.
I am in the worst pain I have ever felt before, need connect to keep busy. Nothing is working.
May I ask how she is treating you for A.A.?
Hi, I remember using Tens, out-patient. It felt good, soothing. My experience and yours, getting a dr. to admit to Arachnoiditis would be a miracle. I had spinal fluid leak also. I had emergency surgery to remove a pain pump than caught, in the hospital, Serratia Bacterial Infection, in-patient for 2 wks on the step down ICU. If you can stand it try not to have any procedures unless an emergency. I do think of you too.
That is why PEMF therpy is going to help!!! I have a good feeling about this and Dr. Pawluck says he knows that it will along with is know of Dr. Tennant.
She is currently treating me for Tarlov cysts (perineural cysts) and I'm in the process of being diagnosed with arachnoiditis. She specializes in various connective tissue disorders and many other conditions. As I said before, she has people from all over the U.S. to see her so that alone must mean something. Please go to her website that I included in the last message and check it out. It does a better job of explaining everything better than I can. If you call they would be happy to answer your questions. I can tell you that she takes wonderful care of her patients and thinks out of the box unlike so many other doctors. I'm sure you have had to jump from doctor to doctor because nobody wants to acknowledge arachnoiditis. She is the doctor that gets stuff done. She gets right on the phone with the radiologists, other doctors if needed, etc. There is no wasting your time going to a ton of appointments that do nothing for you and spending thousands of dollars for nothing. Trust me, I've done it for many years. I'm having the best pain relief I've had in 16 years. She switched me from the fentanyl patches to Oxytocin and Ketamine troches. They work together and dissolve under your tongue. I was afraid to get rid of the fentanyl patches because that had always been my best pain relief. I can say the new medication combo provides more pain relief and is an alternative to the opioids.
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