Living with Neuropathy - Welcome to the group

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Mike m. 75 ,I ran 29 to 68 yrs. Had knee repl.,and started to have bottom of feet start hurting
I bought HOKAwalk shoes with 2 prs. of socks I walk 2_3 miles ever other day.tingling and pain along heel ,left side of bottom left foot. Need to walk for exercise (stay in shape) driving me crazy..thx...

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@barbarabrown831

I’m new to neuropathy. Pain I performsis muscles which skips the legs and goes to bottom of only left foot ( tingling and pain). I’ve had two epideral injections and will have the third tomorrow . I take Gabapenta 300mg TID. Ride a bike everyday for Five miles ( bike seems to help the best)…. CT scan shows a small amount of stenosis with arthritis tossed into the mix . Looking at scan it doesn’t seem bad enough to create all this discomfort … it is getting to be less and less pain but I’ve learned how to manage the pain .when tingly and pain get bad I put my feet in hot water for a minute or two and that makes the tingling go away… but it does rear its ugly head again at some point during day . It’s just a temporary fix …

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Hello @barbarabrown831 and @mikem75, I would like to welcome you both to Connect and thank you for sharing your experience with others. I shared my experience in another discussion here - https://connect.mayoclinic.org/comment/310341/.

Another good source to learn more about treatments that may provide some relief is the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/treatments/.

Have you done any research on your condition for alternative or complementary treatments?

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@mikem75

Mike m. 75 ,I ran 29 to 68 yrs. Had knee repl.,and started to have bottom of feet start hurting
I bought HOKAwalk shoes with 2 prs. of socks I walk 2_3 miles ever other day.tingling and pain along heel ,left side of bottom left foot. Need to walk for exercise (stay in shape) driving me crazy..thx...

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Hi, Mike (@mikem75)

Something in your post caught my attention. It was when you said, "ran 29 to 68 yrs." I'm guessing you were telling us you were a pretty dedicated runner from age 29 to age 68." If that's so, you and I have something in common. I, too, was a big-time runner from my late 20s to my late 60s, when I, too, had a total knee replacement. (I'm 79 now). My friends told me that bicycling would be an adequate substitute for running. I tried. I gave cycling my all. Cycling, while fun, was no substitute for running.. When today I give thought to the various enjoyments my neuropathy has taken away from me, running tops the list.

I wish you the very best in finding a quick solution to your foot pain!

Cheers!
Ray (@ray666)

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@ray666

Hi, Mike (@mikem75)

Something in your post caught my attention. It was when you said, "ran 29 to 68 yrs." I'm guessing you were telling us you were a pretty dedicated runner from age 29 to age 68." If that's so, you and I have something in common. I, too, was a big-time runner from my late 20s to my late 60s, when I, too, had a total knee replacement. (I'm 79 now). My friends told me that bicycling would be an adequate substitute for running. I tried. I gave cycling my all. Cycling, while fun, was no substitute for running.. When today I give thought to the various enjoyments my neuropathy has taken away from me, running tops the list.

I wish you the very best in finding a quick solution to your foot pain!

Cheers!
Ray (@ray666)

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Thx Ray. U were spot on.. I had my knee done 3 yrs. Ago,+everything went to hell.Rt. knee won't flexpast 30°,so can't do bike. Did PT INTENSE 4 MOS..MY LEFT FOOT SYARTED GOING NUMB TOARDS HEEL BOTTOM. Thought it was because stressed heels for PT. JUST GETTING BUMMED ,CAUSE I don' want to give up walking,that's my only venting now..U know what I mean. Sounds as though u got yous figured out? Thx. For my b*thing. Mike

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@ray666

Hi, Mike (@mikem75)

Something in your post caught my attention. It was when you said, "ran 29 to 68 yrs." I'm guessing you were telling us you were a pretty dedicated runner from age 29 to age 68." If that's so, you and I have something in common. I, too, was a big-time runner from my late 20s to my late 60s, when I, too, had a total knee replacement. (I'm 79 now). My friends told me that bicycling would be an adequate substitute for running. I tried. I gave cycling my all. Cycling, while fun, was no substitute for running.. When today I give thought to the various enjoyments my neuropathy has taken away from me, running tops the list.

I wish you the very best in finding a quick solution to your foot pain!

Cheers!
Ray (@ray666)

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You are very fortunate. Like you I ran for years. I was able to ride for a while, but now my balance issues keep me from riding. I can only do a stationary bike. And walking is painful.

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@wburgb1ll

You are very fortunate. Like you I ran for years. I was able to ride for a while, but now my balance issues keep me from riding. I can only do a stationary bike. And walking is painful.

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Welcome @wburgb1ll, It's great to see that you have connected with @ray666 to share your experiences. As another member of the neuropathy club I thought I would let you know of a webinar next week on March 20th on alternative therapies that enhance balance by the Foundation for Peripheral Neuropathy - more details and registration link to sign up (free) are in another discussion here - https://connect.mayoclinic.org/comment/1032303/.

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@mikem75

Thx Ray. U were spot on.. I had my knee done 3 yrs. Ago,+everything went to hell.Rt. knee won't flexpast 30°,so can't do bike. Did PT INTENSE 4 MOS..MY LEFT FOOT SYARTED GOING NUMB TOARDS HEEL BOTTOM. Thought it was because stressed heels for PT. JUST GETTING BUMMED ,CAUSE I don' want to give up walking,that's my only venting now..U know what I mean. Sounds as though u got yous figured out? Thx. For my b*thing. Mike

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Hi, Mike. I'm not sure I got mine figured out. I did have one lucky break at the time of my knee op and that was to be invited to be part of a federal study to try to find out why our quads quicker and to a greater degree than other leg muscles get weak in the wake of knee replacement surgery, For a month before and a month following the surgery I went to a hospital lab where I was made to exercise my both legs so that my quad strength could be recorded. I credit that fed study with keeping my legs, including the one with the replacement, in at least half-good shape. Today, my legs, and in particular my knees, still feel pretty good –– except for arthritis! That seems to get a little worse every year. I figure that the time-release diclofenac that my doctor gave me is at least helping to keep arthritis from getting too painful. These days I miss the pleasure of walking more than anything. Walking isn't much fun anymore. –Ray

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@wburgb1ll

You are very fortunate. Like you I ran for years. I was able to ride for a while, but now my balance issues keep me from riding. I can only do a stationary bike. And walking is painful.

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Hi, @wburgbill. You echo my experiences to a tee! Quitting running was hard, but cycling, city paths and mountain trails, was fun –– for a while! Then, balance "issues" gradually made cycling UN-fun; outdoor cycling, anyway. I switched to walling: long in-city walking and hi-country hiking –– until it, too, became UN-fun. (I still walk –– shopping trips, mostly, and, of course, those doctor visits!). So, me, too: I'm relegated to stationary bike riding in the rather uninspiring surround of my spare bedroom –– a far cry from running, cycling, or hiking at timberline! 🙂 –Ray (@ray666)

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Yes, I’m new to this group! I have under toe burning and numbness, principally at night! Is this a common symptom? Please advise! Thanks, Glenn

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@johnbishop

Welcome @wburgb1ll, It's great to see that you have connected with @ray666 to share your experiences. As another member of the neuropathy club I thought I would let you know of a webinar next week on March 20th on alternative therapies that enhance balance by the Foundation for Peripheral Neuropathy - more details and registration link to sign up (free) are in another discussion here - https://connect.mayoclinic.org/comment/1032303/.

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Already signed up. Most of the seminars are good. Some do not fit my problems; bur I generally learn something.

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