Does anyone have any experience with ketamine for neuropathy pain?

Posted by jeffrapp @jeffrapp, Jul 11, 2023

Does anyone have any experience with, or knowledge of, the use of ketamine for the pain of peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@artemis1886

Here is my prescription compound
My doctor givens it to me for neuropathy at night.
Pain cream
2% Bacflofen
6% gabapentin
10% ketamine HCL
2% cyclobenzaprine
10% Diclofenac Sodium
2.5% tetracaine HCL
25% propylene
10% lipoderm
I has a long lasting lidocaine in it and gabapentin I am allergic to by mouth. Baclofen is a muscle relaxer. It by mouth makes me feel like I have the flu. Wear socks over it sticky.

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I am very interested in the compound that you posted. First would you check your prescription to verify the medication percentage, just say yes or no. Second tell me how it works for you and how long does it last.
You can send me an email if you want.
Almaac@aol.com
Thanks

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I had two Ketamine Injections a week apart and it was an interesting "high" for a couple of hours, but we all concurred that they did nothing to help my severe case of PN, I am trying something called Nerve Savior now so will be anxious to see if it does anything to help. My case is very severe now and so much pain in my feet and hands. I use Sombra on both that helps a little but I am totally allergic to opiates and most drugs so am pretty much stuck with this condition.

I have tried all kinds of things, but so far none have worked I also take acupuncture but it does not seem to we working any longer. I am an 80 year old Vietnam Veteran so way past the 70,00 mile warranty so not much hope for this old Veteran. I can never ever complain as I have enjoyed 38 years with the absolute love of my life and best friend who really spoils me and we have 7 really great old children and 5 grandchildren so I consider myself a very lucky man. I wish anyone out there all the best in their efforts to find some kind of temporary cure for all the pain and will let everyone know if this Nerve Savior works. Thank you all and Semper Fi.

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@artemis1886

Here is my prescription compound
My doctor givens it to me for neuropathy at night.
Pain cream
2% Bacflofen
6% gabapentin
10% ketamine HCL
2% cyclobenzaprine
10% Diclofenac Sodium
2.5% tetracaine HCL
25% propylene
10% lipoderm
I has a long lasting lidocaine in it and gabapentin I am allergic to by mouth. Baclofen is a muscle relaxer. It by mouth makes me feel like I have the flu. Wear socks over it sticky.

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Does a compounding pharmacy prepare that for you? I’d appreciate finding one single cream, for day or night, that would replace the various products I’ve tried individually. .

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@nuance501

Does a compounding pharmacy prepare that for you? I’d appreciate finding one single cream, for day or night, that would replace the various products I’ve tried individually. .

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Yes, it is compounded by a pharmacy with a prescription. It works really good. I advise you to put socks over your feet. I used extra large socks. I can’t stand for tight things to touch my feet. It’s a little sticky. That’s why I wear socks.

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Last question: A Dr. of what discipline prescribes it for you?

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@nuance501

Last question: A Dr. of what discipline prescribes it for you?

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I have an APNP pain management provider. I could run it by her as well.

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@johnbishop

Hi @jeffrap, There are a few discussions on the topic that might be helpful.

--- Lidocaine or Ketamine Infusions: https://connect.mayoclinic.org/discussion/lidocaine-or-ketamine-infusions/
--- Anyone undergo routine ketamine infusions for SFN?: https://connect.mayoclinic.org/discussion/ketamine-infusion/
--- ketamine infusion and topamax??
https://connect.mayoclinic.org/discussion/ketamine-infusion-and-topamax/
At one of the meetings of the Minnesota Neuropathy Association before it disbanded there were a few members that were using a compounded topical that contained ketamine along with THC and found it helpful. They had to have it specially made at a compounding pharmacy. Are you thinking about infusions are searching for a topical medication?

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Is there any way to reduce the symptoms of frequent chest tightness?

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@nuance501

I have an APNP pain management provider. I could run it by her as well.

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Is there any way to relieve the symptoms of frequent chest tightness?

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My Mayo doctor prescribed a ketamine compound for my feet. I used it for a bit but didn’t find it helped much and no longer use it.

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@aaliyah42

Is there any way to reduce the symptoms of frequent chest tightness?

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Welcome @aaliyah42, You might want to scan through the other discussions on chest tightness to learn what others have shared to see if it's similar to what you are feeling. Here's a search link to the discussions and comments - https://connect.mayoclinic.org/search/discussions/?search=chest%20tightness. You can also change the search words to more reflect what you are feeling to see if there is a closer match.

Here's an article on your question with some possibilities if you haven't already seen it.
-- Chest Tightness Causes and Relief: https://www.verywellhealth.com/chest-tightness-5176641

Have you talked with your doctor or care team about the frequent chest tightness?

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