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Arachnoiditis: Trying to find a specialist
Spine Health | Last Active: Mar 31 2:11pm | Replies (325)Comment receiving replies
I ended up with cauda equina syndrome and arachnoiditis after a botched L5-S1 laminectomy. On top of all the severe nerve pain, and lower extremity weakness and atrophy, I had to endure so much unethical and biased behavior from the medical field in East TN. The surgeon said I did not have cauda equina syndrome and it took seven years for me to find a neurosurgeon in NC that would diagnose the conditions in, however, I still do not have a pain management doctor that understands enough about the problems to help me. He prescribes high doses of opioids, which are not helping. Most of my pain is in the rectal area due to the surgeon putting a screw in the sacral nerve root. Did you ever find a doctor to help you?
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@jelizabeth I am so sorry to hear your story and hear about your continued pain! I just continue to see my general practitioner. With the opioid crack down he is so limited now though and my pain seems to be getting worse (it seems) Every day.
Now on top of it I have been diagnosed with shingles. I never got the rash. The dr said we caught it early enough so I have been on the antibiotics but the pain is still there. I pray I don’t get the postherpetic neuralgia where the shingles nerve pain never goes away but with my luck...
Currently I am also having Major swelling in my joints which is Very painful. I had bloodwork done yesterday so I had them add esr and crp levels to see the inflammation going on. I have been bedridden for 8 weeks now. I try to do light stretches/movement but then I get muscle spasms. I am just so totally over it!!