Rectal Cancer - Hospital Recommendation

Posted by mrt2024 @mrt2024, Mar 10 4:11pm

Hi everyone.

Unfortunately, my father has recently been diagnosed with stage 3 colorectal cancer, and we are seeking recommendations for hospitals and oncologists in the Virginia area.

We are currently considering options such as the University of Virginia (UVA), VHC Health (a member of the Mayo Clinic Care Network), and other institutions. If you have experience with hospitals or oncologists in Virginia, particularly regarding their treatment approaches for stage 3 colorectal cancer, we would greatly appreciate your insights and recommendations.

Our priority is to ensure that my father receives the best possible care and support during this challenging time. Your advice and personal experiences will be invaluable to us as we explore our options and make informed decisions.

Thank you for your assistance.

Interested in more discussions like this? Go to the Colorectal Cancer Support Group.

A couple of comments, I had 4th stage rectal cancer and survived . I will be 90 in April and have been clean now for over 10 years.
So for all those who have been told they have this, be assured it is not always a death sentence.
Also, I belong to Friends for Life organization and they put me in touch with people who have the same type of cancer that I had. I become their support. You might look them up on line.

REPLY
@verol65

The two-stage Turnbull-Cutait consists of two surgeries. The first one is the longest (3 to 4 hours, although mine was 5, because I also needed a vaginal flap); the second one is done 5 to 7 days later, for the coloanal anastomosis and takes 1 hour. I got bloated with the pre-op prep (like the prep for a colonoscopy) and for some unexpected reason, I remained bloated, so much so that my intestine was paralyzed, but this is extremely rare.
Recovery is slow, as for any low anterior resection (LAR).
Talk about LARS with the surgeon, since it is often present after a LAR. In the case of a temporary colostomy, LARS will occur after the reconnection.

Jump to this post

Thank you! It seems there is a lot to learn.

REPLY
@fef

A couple of comments, I had 4th stage rectal cancer and survived . I will be 90 in April and have been clean now for over 10 years.
So for all those who have been told they have this, be assured it is not always a death sentence.
Also, I belong to Friends for Life organization and they put me in touch with people who have the same type of cancer that I had. I become their support. You might look them up on line.

Jump to this post

It's incredible to hear how you've overcome such a challenging diagnosis and are now offering support to others going through similar experiences. Thank you for sharing your story.

REPLY
@dsh33782

@mrt2024
I understand your concern about recurrance. I also worry about it, but am now very encouraged that treatments are available and seem to work well. After partial removal of right kidney, my kidney functions are working normally now.
And although the side affects were rough during chemo and radiation for esophageal cancer, I survived at age 78 and am felling well now. I hope you can encourage you father to look for brighter future after treatment. I hope your visit with urologist goes well, and you can learn what the recommended plan is and feel comfortable with it. I'll be interested to hear what you learn?

Jump to this post

My father is hopeful, or it seems that way. My oldest sister is the issue. She thinks as if there is no chance, and that affects us. Of course she pretends everything is normal when my father around us, but... Hope she will be hopeful, too because we all need it.

REPLY
@fef

A couple of comments, I had 4th stage rectal cancer and survived . I will be 90 in April and have been clean now for over 10 years.
So for all those who have been told they have this, be assured it is not always a death sentence.
Also, I belong to Friends for Life organization and they put me in touch with people who have the same type of cancer that I had. I become their support. You might look them up on line.

Jump to this post

I am also curios about turkey tail mushroom. There is some information here on cancer . gov ( The system doesn't allow me to share the whole link.)
I have read and watched something about it. It seems it has a lot of positive effects on immune system. I know that the oncologist will tell he doesn't know anything about it and don't use it during chemotherapy because we don't know how that supplement interacts with chemo. I know The FDA does't approve dietary supplements as safe or effective so they will never tell us to use it. We are planning to tell the oncologist; " We are determined to use turkey tail mushroom capsules, and we will use it. We just wanted to let you know."

Do you have any experience using those kinds of things?

REPLY
@mrt2024

Thank you! It seems there is a lot to learn.

Jump to this post

Yes, there is a lot to learn and there are support groups, like the forums here on Mayo Clinic Connect or this LARS group on FB that is for patients with LARS and their caregivers: https://www.facebook.com/groups/lwlars, and other online resources.

REPLY
@verol65

Having another tumor elsewhere makes quite a difference. Do ask all the questions you can think of. You can consult https://fightcolorectalcancer.org/facing-colorectal-cancer/diagnosis-and-treatment/know-your-treatment-options/; it might help you define your questions.

There is a surgery that avoids a temporary colostomy. You could ask if it's an option for your dad. It's called a two-stage Turnbull-Cutait pullthrough (with coloanal anastomosis).

Also important is to maintain a positive attitude, trusting that you're getting the best care available to you.

Sending a big hug.

Jump to this post

Update After Colorectal Surgeon

Firstly, he said the surgery might happen in about 12 months, and it'll be a robotic surgery. He also mentioned a 20% chance that surgery might not be needed, suggesting a "watch and wait" approach with check-ups every 3 months if that happens. It depends on many things...I asked about the two-stage Turnbull-Cutait procedure, but he advised against it because of infection risks and other issues from radiotherapy. So, it looks like there will be need of a temporary colostomy for about two months. We'll have plenty of time to talk about it more later. They want to do the kidney surgery first, followed by treatment for the rectal cancer about two months later. But this plan isn't final yet. All the doctors need to meet again and decide together.

I also asked about proton and photon radiotherapy. I know I have to ask this question to the radiologist, but I wanted know his opinion, too. Proton therapy seems less harmful for healthy tissues so I wanted my father has this therapy. He said, he prefers traditional, most effective one due to the location of tumor.

REPLY
@mrt2024

Update After Colorectal Surgeon

Firstly, he said the surgery might happen in about 12 months, and it'll be a robotic surgery. He also mentioned a 20% chance that surgery might not be needed, suggesting a "watch and wait" approach with check-ups every 3 months if that happens. It depends on many things...I asked about the two-stage Turnbull-Cutait procedure, but he advised against it because of infection risks and other issues from radiotherapy. So, it looks like there will be need of a temporary colostomy for about two months. We'll have plenty of time to talk about it more later. They want to do the kidney surgery first, followed by treatment for the rectal cancer about two months later. But this plan isn't final yet. All the doctors need to meet again and decide together.

I also asked about proton and photon radiotherapy. I know I have to ask this question to the radiologist, but I wanted know his opinion, too. Proton therapy seems less harmful for healthy tissues so I wanted my father has this therapy. He said, he prefers traditional, most effective one due to the location of tumor.

Jump to this post

I'm glad you could have this frank conversation with the surgeon. It's a good thing that the various doctors will get together to weigh the different factors in your father's case before making a final decision on his treatment. I truly hope all will go well. Your father is lucky to have you looking for information and supporting him through this ordeal.
Sending a hug to your whole family.

REPLY
@verol65

I'm glad you could have this frank conversation with the surgeon. It's a good thing that the various doctors will get together to weigh the different factors in your father's case before making a final decision on his treatment. I truly hope all will go well. Your father is lucky to have you looking for information and supporting him through this ordeal.
Sending a hug to your whole family.

Jump to this post

Thank you so much for your kind words and support. It means a lot to me and my family during this challenging time.

REPLY

Update After Urologist Visit

Got back from Dad's appointment with the urologist. They've decided to schedule his kidney surgery soon. It will be robotic (da Vinci) surgery. During the discussion, the urologist explained that the mass lacks clear boundaries, indicating a 50%-60% likelihood of radical surgery. However, she assured us that she will strive to perform a partial surgery if feasible.

Given my father's high blood pressure and the potential side effects of subsequent chemotherapy for rectal cancer, there is a consideration of the worst-case scenario, which could mean he might need dialysis. I don't want to think about it right now. I believe the medical team will closely monitor and adjust the treatment plan accordingly.

REPLY
Please sign in or register to post a reply.