Peripheral Neuropathy Foundation

Will be getting injection

Started daily injections 4 months ago after bloodwork at a hematologist. Anxiety, mood swings, air hunger, panic attacks, and some pains are gone. But I’ve learned it can take years before the fatigue, movement difficulty and neuropathy remit. I’m hopeful and will continue the jabs for the rest of my life. b12 and cofactors are the only treatment.

Thank you for answering. Glad you have some relief and keep us posted when you notice an improvement in the fatigue.

Will do, hopefully soon!

I am also new to Peripheral Neuropathy and my family physician has not been helpful so I've had to navigate and figure this out on my own. I'm lucky to have found a physio who is very unique and helps me to experience muscle relief. I had a rant of frustration that I let loose on Facebook which prompted lots of words of encouragement from friends but also a number of suggestions. As a result I have downloaded two Apps which I am using daily. They are: Curable and Bearable. Check them out. I have lost so much muscle tone but have just started seated exercises as my upper limbs are OK...well mild neuropathy. This is really tough. Much of my social life revolves around active activities...so a big loss at that end as well.

Upcoming webinar...
FPN Webinar: Alternative therapies that enhance balance
Wed, Mar 20, 2024 12:30 PM - 1:30 PM CDT

The Foundation for Peripheral Neuropathy (FPN) is pleased to welcome LeeAnn Manoni, DC, who will present on alternative therapies that enhance balance. During this webinar, Dr. Manoni will speak about therapies that can improve communication from the brain to the body to enhance balance. She will also discuss possible home therapies that can impact your balance and what should you invest your time in daily. This program will also touch on what supplements or food can impact neuropathy. A live Q&A will follow to conclude.

Register here - https://register.gotowebinar.com/register/1289570346142802012

@gba, @kim2, @mecha, @ray666, @njed, @oliver4, @dbeshears1, @yojimbob and others with balance problems from neuropathy - There is an upcoming webinar by the Foundation for Peripheral Neuropathy next Wednesday, March 20th that you may find helpful - FPN Webinar: Alternative therapies that enhance balance.

More details and a link to register for the webinar are in the above post - here's the link to the post - https://connect.mayoclinic.org/comment/1032303/

Hello @artemis1886, Thank you for the private message. I hope you don't mind but I thought I would respond to you in this discussion on the Foundation for Peripheral Neuropathy to give others a chance to add their thoughts.

You asked "On the website for the Foundation of Peripheral Neuropathy why do they not list autoimmune? " - Actually they do have quite a bit of information on autoimmune disease - https://www.foundationforpn.org/causes/autoimmune-disease/.

You also asked if autoimmune considered rare. My personal opinion/view of autoimmune disease is that it is a group of conditions much like neuropathy is a term used that includes many different types of nerve related conditions. The NIH has a page on Autoimmune Diseases that does a good job of explaining what it is along with references to other related sources - https://www.niehs.nih.gov/health/topics/conditions/autoimmune.

Hoping this will give you some help trying to understand the conditions more. It helps me a lot to read the sources as they relate to what I'm feeling or trying to figure out what may cause/help symptoms with my own health. I'm happy to see that you are trying to learn more about your conditions and what may help.

John - Thanks for letting us know about the upcoming webinar. I will register. Ed

Thanks, John! I’m definitely going to look into this.