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Sjogrens/Inflammation/Uvulitis

Autoimmune Diseases | Last Active: Mar 18 5:09pm | Replies (14)
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@cprgrossman52

YES!! my primary doctor has NO clue. Everytime I have a SS flare-up my uvula becomes sore, swollen, hangs down like a translucent blob, burns and lasts about a week. And actually will be discussing this issue with a rheumatologist at Duke University next month to get her take on the issue. Will post on what is said later. What I have noticed in the past 20 years is a lack of investigative personalities in the medical field, so don't give up, change your doctor if necessary or look up the information on NIH and help to educate your primary care doctor with written information. I have found this to be helpful with my issues that I can't get them to listen to, understand, or care to figure it out. Don't just settle for, shove a pill in my hand and go away attitudes from the medical field. I believe they're all brainwashed by the drug companies nowadays.

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Replies to "YES!! my primary doctor has NO clue. Everytime I have a SS flare-up my uvula becomes..."
Becky, Volunteer Mentor | @becsbuddy | Mar 13 6:52pm

@cprgrossman52 Welcome to Mayo Clinic Connect! It’s always a problem when the PP doesn’t know about something. But it’s not unusual. Autoimmune diseases are rarely known or recognized. But, I’m so glad you have an appointment with a rheumatologist! Ask if this doctor will take over the management of your SS.
What do you hope will come out of the appointment with the rheumatologist? What questions would you like to ask?

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harley22 | @harley22 | Mar 13 7:42pm

I’ve been saying the same thing for several years now,that I need Dr. House to try and diagnose me since no one seems to be able to.
Maybe some day he will come along!

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jkm54 | @jkm54 | Mar 16 2:57pm

sorry you have to go through this. I believe it is too common. Still waiting for a dx from rheumatologist. Think I am bugging them when relate new symptoms to help get a dx. Good luck to you! I believe in sending them info. It's funny? that the Dr who listen's the most and asks questions, is my PC. She has been practicing 3 years; fresh out of med school.

Judy

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