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Conflicted/Confused, any Guidance/Advice out there?

Prostate Cancer | Last Active: Mar 31 2:33pm | Replies (72)

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@heavyphil

Hey buddy, the truly unfortunate thing is that NO testing can guarantee that it is defined only to the prostate. Even ONE cell that gets out can set up shop and start the whole thing all over again.
I had an MRI and a PET before my surgery ( had to pay 7K out of pocket for the latter) and both showed no spread. My surgical pathology slides showed no spread and negative margins….yet here I am facing recurrence.
The only thing surgery provides as initial treatment is to be able to have radiation and ADT if it recurs. VERY difficult and ill-advised to have surgery after radiation.
So that greatly impacted my decision and I am glad/sad with my choice. And surgeons and radiologists both have bad days so the human factor is enormous….It’s gut wrenching for sure!!!

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Replies to "Hey buddy, the truly unfortunate thing is that NO testing can guarantee that it is defined..."

Totally agree if it gets out, it’s a new ballgame. Really sorry to hear of the recurrence. You’re spot on about the human factor and the reason this is such a difficult choice. What seems to be pretty consistent in the research and advice from good folk like you is to deal with TOP Hospitals and Doctors. I hope everything works out well for you. Take care.

Thank you.

per my medical oncologist....a PET cant see cancer if the PSA is less than 2.0. sorry about that big waste of money guy. I m on ADT now with less than 0.01 PSA..