1. < Neuropathy

I found an answer to the pain and burning at night, I hope that it you

Posted by schwartz @schwartz, Feb 19 2:33pm

Although I do not have celiac disease and I am not diabetic, I found that going on a gluten free diet stopped the burning sensation in my legs at night, but it did not stop the pain. I am now on an anti-inflammatory and gluten free diet and although I still have the peripheral neuropathy, the pain and burning is GONE. It is not easy to make this change but for me it was well worth the effort. Google anti-inflammatory diets and strictly follow it. It will work quickly. Sugar is your enemy, as is wheat, rye and barley, along with many other things. Unless medical science finds a cure for pn, I will have live with it, but changing my diet has STOPPED the pain and burning.

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mecha | @mecha | Mar 12 5:09pm
In reply to @daj3333 "If you no longer have pain and burning, do you mind if I ask what symptoms..." + (show)
@daj3333

If you no longer have pain and burning, do you mind if I ask what symptoms of PN do you have left? Getting rid of pain and burning would be wonderful for most people

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En mí caso,no puedo manejar los movimientos de mis piernas,o mejor dicho los manejo deficiente mente.Y mí equilibrio es muy elemental. Supongo que la falta de movimiento aumenta mí desequilibrio

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taterjoy | @taterjoy | Mar 12 10:57pm
In reply to @crossette "@taterjoy Here is a schematic showing the 3 parts with a parts list. You will need..." + (show)
@crossette

@taterjoy Here is a schematic showing the 3 parts with a parts list. You will need to solder the connections and cover them with heat shrink tubing or electrical tape. There is no danger of shock at 6 Volts. The LED and resistor may get slightly warm or not. Just keep checking it to be sure you don't burn your skin. Mine runs cold using a 10 Ohm resistor. A 5 Ohm may create more heat. To use it just place it against your skin in the targeted area and run for 10 minutes. Then move to another area if wanted. So far I have seen no change but I just started using it once every 2 or 3 days. The photo shows how mine looks. The resistor is in black heat shrink tubing so you can't see it.

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thank you so much! That's amazing. I appreciate it and am pasting to give to share. I hope the increased treatments will help you, and others! Chronic pain can be debilitating, crippling, depressing and defeating. This provides hope! Thank you for taking the time to share the description and photos.

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cjk | @cjk | Mar 13 3:07am
In reply to @jakedduck1 "@daj3333 I can only speak for myself, but it's not as wonderful as you might think...." + (show)
@jakedduck1

@daj3333
I can only speak for myself, but it's not as wonderful as you might think. Although it's nice not to have all the painful sensations any longer the neuropathy is actually getting worse. More nerve fibers die and the numbness gets worse. Less to no feeling which is dangerous. Also in my case the neuropathy caused ED, bowel, bladder issues and leg and other weekness.
Neuropathy can also effect the heart, lungs, circulation and blood pressure problems and worsening balance.
Jake

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Hi, I'm C.J. I'm sorry to hear that you are going through so much. I understand what you mean about ED. My best friend has it from diabetes and had to have open heart surgery (now on meds that make it worse). He has neuropathy in his feet and knees and lower back. The dr. Prescribed Gabapentin (Neurontin). It helps if he takes it regularly, not just when then the numbness and pain come on. The is also some called lidocaine patches you might be able to get at the drug store over the counter. Another name for it is Solanpas. They are rectangular sticky patches that you put on the area you are in pain. Leave them on for as long as the directions say and it helps relieve some pain. If you have numbness, it is a good idea to massage the area gently to get more blood circulation so that you don't get gangrene. My grandmother had diabetes and didn't take good care of herself, so she got severe gangrene in both legs and had to have double amputations below the knees. Those surgeries didn't heal well and then she had to have surgeries again above the knees. She loved to drink real cream all the time, which has way too much fat in for a diabetic diet. She developed severe kidney disease and that eventually killed her. She knew for over a year that she was dying and we would talk about it.
I pray you find comfort, help and peace, C.J.

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saraabrooks | @saraabrooks | Mar 13 8:36am

I am 78 and learned my lesson in my early 40s. I went to a psychic medium (hang in for a min.) and he told me: Sara, you are not allergic to wheat, but INTOLERANT. Your body is rejecting it. Most grains will bother you. Stay clear of all grains and this includes rice - according to him. It was hard to give up bread, pasta, etc. By end of the first week I felt better. It's hard to keep on this type of eating, but I do it for stretches at a time. I love bread and pasta, but I love feeling good too. As the old adage goes, you are what you eat. One nice thing, I found spaghetti and fettucine dried noodles in a simple cellophane pkg and it's grown, processed and packaged in Italy. I can eat that. Believe or not, I found it at Pickn'Save. Not the same wheat as here in the States. Sara BTY, I am not diabetic and walk without pain.

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ann707 | @ann707 | Mar 13 11:36pm

I have found the sugar connection. For a friends birthday they got me a gluten free cupcake (I'm celiac). It had lots of frosting and I can assure you the cupcake and frosting tasted fantastic. I rarely eat any pastries or candy and definitely not in that large an amount. Within 4-5 hours I felt my whole body tingling. It took a couple of days for it to calm down. This made me pay attention that I had also been eating 5-6 prunes everyday for bone building. I finally noticed that my feet/toes would start to burn, turn red and tingle in the evening; I took all 5-6 around 3-4 PM. I stopped the prunes and I didn't have any burning/tingles. I never made the connection with sugar /carb intake before but it sure makes a lot of sense.
I've haven't solved the whole problem of sugar since the wrong carbohydrates or too much carbs can have the same effect. Had a good sized apple and some garbanzo beans and had the burning again.
Now I'm in the process of designing a diet that I can live with and reduce the PN.
Also I am not diabetic but that doesn't necessarily mean I'm not pre-diabetic.

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kbirchem | @kbirchem | Mar 14 6:44am
In reply to @cherbear2cubs "I have a small red light unit that I purchased for under $1000 that I have..." + (show)
@cherbear2cubs

I have a small red light unit that I purchased for under $1000 that I have used for the last 4 months 1 hour daily. It may be helping the symptoms at night somewhat, hard to tell. I also hae done some alternative treatments at the same time like shock wave therapy on the bottom of my feet and vibration plate. Sometime I think it has made a difference other nights are bad with the pins and needles. I am trying not to go on meds which is the only answer the neurologists seem to have. If you are considering red light research the best ones because it makes a difference.

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I have had PN for several years. At night I put on a salve from Mary Janes Medicinals . It is 4000 mgs of CBD . I also put on magnesium lotion with the salve . It stops the tingling and burning for a few hours so that I can sleep . I wish you the best . Never give up or give in !!

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1 reply
adejuliannie | @adejuliannie | Mar 15 4:09pm
In reply to @kbirchem "I have had PN for several years. At night I put on a salve from Mary..." + (show)
@kbirchem

I have had PN for several years. At night I put on a salve from Mary Janes Medicinals . It is 4000 mgs of CBD . I also put on magnesium lotion with the salve . It stops the tingling and burning for a few hours so that I can sleep . I wish you the best . Never give up or give in !!

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I use Red Light Therapy which I bought from Novaalab has take all pain from Neuropathy in legs an Feet. It's FDA APPROVED
COST ME $224 worth every cent

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1 reply
barbarabrown831 | @barbarabrown831 | Mar 15 5:01pm
In reply to @adejuliannie "I use Red Light Therapy which I bought from Novaalab has take all pain from Neuropathy..." + (show)
@adejuliannie

I use Red Light Therapy which I bought from Novaalab has take all pain from Neuropathy in legs an Feet. It's FDA APPROVED
COST ME $224 worth every cent

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How old r u, how long did it take to get to the point of no pain . I know every one is different

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