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Neuropathy: My Journey

Neuropathy | Last Active: Apr 8 5:04pm | Replies (62)

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@artemis1886

Just how many different types of neuropathy can one person have?
CAN- cardiac autonomic neuropathy
Severe axonal sensorimotor peripheral
polyneuropathy
Small fiber Neuropathy
Dysautonomia Neuropathy
What’s next?

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Replies to "Just how many different types of neuropathy can one person have? CAN- cardiac autonomic neuropathy Severe..."

If you get an answer to your question please post. Many people have the same question. Thanks

I'm not sure anyone can really answer the question with specifics due to the complexity and range of symptoms and causes. Some of your questions are discussed in this John Hopkins reference.

"There are more than 100 types of peripheral neuropathy, each with its own set of symptoms and prognosis. Peripheral neuropathy has many different causes."
"Can you have multiple types of neuropathy?
Damage to these nerves can be serious. Combination neuropathies. You may have a mix of 2 or 3 of these other types of neuropathies, such as a sensory-motor neuropathy."
--- Peripheral Neuropathy: https://www.hopkinsmedicine.org/health/conditions-and-diseases/peripheral-neuropathy

Hi @artemis1886, Thanks for the private message. I'm sure you are not alone when comes to feeling you are getting all kinds of neuropathies. When new or different symptoms pop up often that's what I start thinking myself - what's going on now. Your question about a service or support dog is a good one and I'm sure you are not the only one that has thought about getting or needing one. Here are a couple of discussions that are not in the Neuropathy support group but that you still might find interesting if not helpful:

--- Training or Getting a Service Dog: https://connect.mayoclinic.org/discussion/service-dog/
--- The value of an animal: https://connect.mayoclinic.org/discussion/the-value-of-an-animal/

There is CIN-chemo-induced neuropathy. I doctors said it would go away after cancer treatment, but a year and a half out from treatment, I still have neuropathy in my feet, toes, hands and fingers and balance is not good. I have a strong margin for falling and/or bone fractures. I am 83 years old so this is not good. Started Fosamax and had terrible stomach pain, and bone pain in my legs. I stopped this and going to discuss with primary about what to do next. Also, tried anti-cancer drug IV and after third treatment neuropathy got so bad I could not sleep due to both pain and tingling. I stopped treatment and decided not to do Tamoxifen, also because of side affects. Everyone has to decide what is best for them I guess.

Bone builders are tough on you. I tried them all but one hurt less that the others. The insurance would not cover that one. I had avascular necrosis ( the bone does lack of blood flow then the bone collapses) along with osteoporosis. Bottom line my doctor ( orthopedic surgeon) said I had a choice keep breaking bones or take something to strengthen them where they would not break so easily. I had three left hip replacements and an actebulum fracture in one year. I had to buck it up and endure the pain for two years.
I was 36 and now 61.

Has anyone tried nooro pads?
Barb

Although I have NOT used nor commented about the Nooro device, I have indeed been coping with neuro pain in my feet (other areas as well!). I was always told by many doctors that the pain was not due to diabetes, but no one could identify the source either...
Yes, John, I have tried various "self remedies" in my quest for at least some relief, and you are correct that I've responded to members postings about their respective pain and quest for relief. I am still on that journey!

Would be happy to address members' questions. Perhaps they will find a nugget of comfort by trying to implement strategies that I've tried over the years, or at least find reassurance in connecting that they are not alone, not imagining what they feel, and that they need to best advocate for themselves.

As for the Nooro device, I did search for info (a few months ago) and decided against purchasing/incorporating it in my self-care.

Hey Friends,
I have been getting the Cyclone laser treatments on my feet. I wanted to let you know that it really feels good for one thing. I would say that the feeling in my feet has gotten about 50% better. That is probably the best it will get in my opinion. I am now in the phase of maintaining the improvement. So, for me this is well worth the out-of-pocket cost. Insurance will not cover any of it. You must find a highly credible chiropractor. I mean one that truly cares enough to invest in the proper equipment and time and expense of training. I am told that the machine is in the $50,000 range. I also had shock wave treatment on one foot for Fasciitis that is totally gone. Amazing!
I am here to tell you that my experience is that you have got to find the right Chiropractic center! I have been to many in my life none come close to this one. He now has people coming from hours away and is extending hours to accommodate first taking care of prior patients and then new patients. The staff is outstanding and truly want to see you improve. That is very important. They go far beyond what they "have to do". People I want you to also know that my feet are uncomfortable after being on them a few hours, but I can feel that, and that is welcomed. I am no longer digging my toes into the shower floor, things like that. Not a cure but sure is better than the road I was heading done. Now I also had them treat my neck and hands with laser and that what not as helpful. But, that is ok. My feet did improve. Just Rember that one, the treatment has to be performed with this special equipment and two the rest is the office and staff. That is my take away.

Is diabetic neuropathy considered small fiber?