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M-Spike, High Kappa and Kappa/Lambda Ratio
Blood Cancers & Disorders | Last Active: May 7 11:35am | Replies (78)Comment receiving replies
I absolutely will let you know. Thanks for showing interest.
To add to the stress of it all, my primary care physician - whose care I was under for over 20 years and someone I hold in the highest regard - retired last year and I haven't found a new one yet.
Then there's the issue of health insurance. I have insurance, but I think it's a bit limiting in terms of who/where I can be treated. It's insurance provided to city government workers and I fear that I'm restricted to being treated by health care professionals only in my state. So if I want to seek treatment at, say, the Mayo Clinic in Rochester, MN, I may not be covered - at least not to the extent I otherwise would be. I'll need to read the finer details of the policy. That being said, however, I live in NY where the concentration of better doctors is higher than other parts of the country.
Replies to "I absolutely will let you know. Thanks for showing interest. To add to the stress of..."
Most likely, all you need to do is ask your Primary Care Doctor or Oncologist to send a letter to your Insurance dept. stating that you will need to get a 2nd Opinion for your care, and that will be at Mayo Hospital in Rochester, MN.
The Insurance Co. have to send you for a second opinion per law. Now if you have to stay in your own State of New York for the opinion, I’m not sure but if they don’t have Qualified Doctors to treat you in New York then they have to send you to MN!
I’m a retired Nurse at huge Hospital in CA. Also sick with MGUS for years and having M-spikes in Kappa free light chains for last year again. Going back to my Oncologist next week to find out what’s going on? Haven’t been feeling well. So I know what your going thru. Have had MGUS for 20 years now.
I’ve had several Bone Marrow Biopsies. They will give you a numbing gel around area before they go in with the needle, and then it is a little painful but it’s not something that needs to be done in the hospital where you need to be put under.
You should be fine! Just try to relax. Take deep breaths and meditate.
If you have any other questions I’m here to answer them if I can.
I’ve been to the Mayo Hospital/Clinic in MN about 8 years ago for a 2nd opinion. Best choice I’ve made! They were so thorough and completed all my tests, labs, X-rays, CT Scans, EMG’s . Everything done in 3 days. The Doctor was so professional and highly regarded as the best in their field!
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Sometimes you can get permission to go out of network to a place like Mayo if you have a rare disease. Mayo has many amazing myeloma docs, it’s where I go for my myeloma. I assume it’s the same for all blood cancers. Often all you need is that expert opinion for your local doc to follow.