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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)
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@deanna529

After 6 months on Mavacamten, I decided to quit. I had side effects triggered by the meds. Too coincidental for me to continue. I am now involved in a double-blind clinical trial for Aficamten. So far no side effects except for tiredness. Which I have always had.
Best of luck.

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katiekins | @katiekins | Mar 12 4:00pm

Hi Deanna, so sorry to hear you came off Camzyos. May I ask what your symptoms were? I felt great on it for a couple of weeks but had to stop also of side effects sadly. Does anyone know how long it takes for the drug to come out of our system. Aficamten I don’t believe is here in the U.K. so am thinking of a myectomy.
Thank you, wish you all the best.

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