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Ehlers Danlos Syndrome, MCAS, POTS, and MALS

Bones, Joints & Muscles | Last Active: Jun 12 9:01pm | Replies (46)
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@colleenyoung

Hi @gpowr23, welcome. Dr. Darce Knight heads the EDS Clinic at Mayo in Jacksonville. You may wish to follow the EDS expert blog here:
- Ehlers-Danlos Syndrome Blog https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/

Here's more information about the history of the clinic and the clinical team
https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/tab/history/#ch-tab-navigation
Are you at Mayo Clinic in Florida?

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Replies to "Hi @gpowr23, welcome. Dr. Darce Knight heads the EDS Clinic at Mayo in Jacksonville. You may..."
gpowr23 | @gpowr23 | Mar 12 4:42pm

Hi Colleen,
Thanks for the links.
No, I'm actually in the Boston area.
I'm in the process of applying for surgery with Dr. Fogelson, a 2nd spine surgery, the first one was in Jan. 2023.
My recovery may have been affected by some sort of "connective tissue disorder"- I had genetic testing about 10 years ago- when there wasn't yet a test for hEDS.

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