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@lynnehenry21

I am deaf in my right ear from minear’s Desease. Last November i lost hearing in my left ear and could not understand any speech or music. I was terrified and went to an ENT who said it was AIED wanted to put me
on high dose steroids. I choose to call my Otolaryngologist that diagnosed my Minears. He said it was AIED and sent me to a rheumatologist that gave me a powerful drug for rheumatoid arthritis. I had a bad reaction and he had no other options. I am now going to be evaluated in May for a cochlear implant with my Otolaryngologist at UTSW.

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Replies to "I am deaf in my right ear from minear’s Desease. Last November i lost hearing in..."

Having a somewhat similar as of yet undiagnosed disorder, I wish you the best of all outcomes in your quest for relief.

Mostly the doctors don’t know what to do with you. I am unable to take steroids. But over 30 years I am mostly stable on vitamins and low sodium diet

Can you remember the name of the drug the rheumatologist put you on.