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Anyone have Cutaneous T Cell Lymphoma?

Blood Cancers & Disorders | Last Active: 2 days ago | Replies (171)

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@shari715

Hi. I am not sure what your doctors have told you. I am stage 1A and currently doing phototherapy. I believe this is a chronic condition that will according to oncologist require constant monitoring and treatment but will not “kill me”. My dermatologist is more optimistic and says phototherapy will be the only treatment needed and it is chronic. In other words wait and see.

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Replies to "Hi. I am not sure what your doctors have told you. I am stage 1A and..."

I was diagnosed late last year. I am stage 1B. I have used the Triamcinolone cream and have just started the phototherapy. I have been told, basically, what you have stated.