1. < Lung Health

Lung volume

Posted by johnnyv46 @johnnyv46, May 19, 2016

My lung volume is 15%. I didn't ask doctor what this means out of fear, about a week ago. All he said was its "bad ". I left office and I am fearful to really research this. Please respond positively ( you know what I mean) what should I expect?

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johnnyv46 | @johnnyv46 | Jun 8, 2016
In reply to @jms7 "Hello Friend, I hope you update on your recent appointments. So many of us with lung..." + (show)
@jms7

Hello Friend,
I hope you update on your recent appointments. So many of us with lung damage feel isolated when those around us hear our words but do not translate what it actually feels like to not be able to breathe. You have lots of people here who understand the fear and stress. I have had very low lung capacity from past lung damage and anytime I have an infection. I sleep upright, which is ok, I'm used to it. I meditate, use only natural products, and do gentle yoga and gentle exercise in general, which really helps me. I am praying for you, you are never alone. A loving God and Angels are watching over you. With Love : )

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Thank you for your reassuring words. I will keep you in my prayers, along with all the inflicted people in the world.
I have been working with a physical therapist twice a week. I have a set of easy, but effective exercises that I do daily. It has made me so much better, physically and mentally. It gave me self-confidence and ,some, much needed , peace of mind.
Will you share with me what your lung capacity is? If not, I understand.
You have a good day for yourself and God bless you.

John

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jun 8, 2016

Hey @johnnyv46 Nice to "see" you. I love it when members upload a picture on their profile. Just seeing the ocean behind you makes me breathe deeper. What encouraging news that you are now seeing a physical therapist twice a week and that the exercises have benefit beyond physical health. Keep up the great work. It inspires many to do the same.

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Katherine, Alumni Mentor | @katemn | Jun 8, 2016
In reply to @jms7 "Hello Friend, I hope you update on your recent appointments. So many of us with lung..." + (show)
@jms7

Hello Friend,
I hope you update on your recent appointments. So many of us with lung damage feel isolated when those around us hear our words but do not translate what it actually feels like to not be able to breathe. You have lots of people here who understand the fear and stress. I have had very low lung capacity from past lung damage and anytime I have an infection. I sleep upright, which is ok, I'm used to it. I meditate, use only natural products, and do gentle yoga and gentle exercise in general, which really helps me. I am praying for you, you are never alone. A loving God and Angels are watching over you. With Love : )

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Hello John, just LOVED seeing your photo with the gorgeous ocean behind you .. you go fella! Love it! I am SOOOO happy for you that you are just plain taking charge .. working with a physical therapist .. finding serenity .. so happy for you! I was blessed with a friend getting me started working out at age 30 so when the MAI/MAC hit me I was really in pretty darn good shape . Truthfully I don't have a clue what my lung capacity is .. I looked over my November 2015 testing from Mayo Clinic .. really didn't know what to look for. Frankly I rely on Dr. Aksamit to put "the puzzle" together and figure out what needs to be done with my treatment plan .. that is how much I trust him at this point.

All I know is that at age 73 I can hop on my Nordic Track and go at it for 30 minutes while I watch something on Netflix .. and then do my yoga after. I have an attitude of gratitude for that. While I was really sick with the MAI/MAC and before I went on the meds I was coughing so badly that I strained my back and didn't work out for several years .. really just got out of the habit. Amazed that I COULD get out of the habit after so many years of doing it. But am now back at it and happy to be more active.

Again, John .. so happy you are so active and doing so well! Sending you a big hug! Katherine

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johnnyv46 | @johnnyv46 | Jun 9, 2016
In reply to @jms7 "Hello Friend, I hope you update on your recent appointments. So many of us with lung..." + (show)
@jms7

Hello Friend,
I hope you update on your recent appointments. So many of us with lung damage feel isolated when those around us hear our words but do not translate what it actually feels like to not be able to breathe. You have lots of people here who understand the fear and stress. I have had very low lung capacity from past lung damage and anytime I have an infection. I sleep upright, which is ok, I'm used to it. I meditate, use only natural products, and do gentle yoga and gentle exercise in general, which really helps me. I am praying for you, you are never alone. A loving God and Angels are watching over you. With Love : )

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Katherine,
You are such an inspiration. Now I understand something about your condition and like they say "never assume anything".
I didn't understand, my fault, what MAI/MAC was all about and just assumed you had, end stage emphysema. I like being "taken to school", as they say, 🙂 because I didn't realise, the many different kinds of afflictions of the pulmonary system there are.
So you opened my eyes and I' am grateful.
Your lung capacity probably doesn't have any relevance to my condition..
Thank you for making me slow down and read more, carefully and comprehencelly; a must, when researching.
You have a wonderfull day, Katherine. God bless.
John

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johnnyv46 | @johnnyv46 | Jun 9, 2016

Thank you for the kind words. They do not fall on deaf ears.
John

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CherylOBerry | @cheryloberry | Jun 9, 2016

Im a 57 y old female. Havent smoked in 20 years. I had a lung functioning test today.The examiner that did

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1 reply
CherylOBerry | @cheryloberry | Jun 9, 2016
In reply to @cheryloberry "Im a 57 y old female. Havent smoked in 20 years. I had a lung functioning..." + (show)
@cheryloberry

Im a 57 y old female. Havent smoked in 20 years. I had a lung functioning test today.The examiner that did

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The test said it was not a good test. Thats all he would tell me
55% on one lung. Thats all I know

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Ali Skahan | @aliskahan | Jun 10, 2016

Hi @cheryloberry, welcome to Connect! I moved your post to this discussion thread so you can meet other Connect members talking about lung test results. Please meet @johnnyv46, @jms7, @katemn and @elsinann.

Here's some information on lung function tests http://www.nhlbi.nih.gov/health/health-topics/topics/lft/

@cheryloberry do you have a follow-up appointment planned to learn more about your results?

REPLY
jms7 | @jms7 | Jun 10, 2016
In reply to @jms7 "Hello Friend, I hope you update on your recent appointments. So many of us with lung..." + (show)
@jms7

Hello Friend,
I hope you update on your recent appointments. So many of us with lung damage feel isolated when those around us hear our words but do not translate what it actually feels like to not be able to breathe. You have lots of people here who understand the fear and stress. I have had very low lung capacity from past lung damage and anytime I have an infection. I sleep upright, which is ok, I'm used to it. I meditate, use only natural products, and do gentle yoga and gentle exercise in general, which really helps me. I am praying for you, you are never alone. A loving God and Angels are watching over you. With Love : )

Jump to this post

Hi Johnny I'm so happy to hear of your physical therapy. It is amazing what physical movement does! Being proactive says we love ourselves enough that we deserve miracles, God's blessings, and loving support. I have had as low as 20% capacity even with meds and oxygen, but that has only been with severe flu and respiratory distress. I can't imagine having 15%. But do know that I and others have that sense of stress and fear that come with breathing difficulty. I love doing upper body gentle exercises, like extending my arms, palms and head up, praising and thanking all the love and blessings in my life, and my lungs and heart smile too. Keep well everyone and enjoy the miracles of today! : )

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rama | @rama | Oct 7, 2016
In reply to @colleenyoung "Hi @johnnyv46, welcome to Connect. Sometimes fear can paralyze us. I get that. But only by..." + (show)
@colleenyoung

Hi @johnnyv46, welcome to Connect. Sometimes fear can paralyze us. I get that. But only by asking questions can we find answers to get help. That's why I'm glad you had the courage to ask your question here on Connect today.

I'm inviting fellow Connect members @katemn @elsinann @Paula_MAC2007 @pd02 @nadine66 into this discussion. They all are dealing with a lung condition of one type or another and have experienced lower lung capacity.

Johnny, what lung condition do you have? Tell us a bit more about yourself.

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Hi this is Rama from India..am suffering from chronic polymyositis for about 12 years..now am at 29 ..firstly i found difficulty to squat so I consulted neurologist in that hospital they taken so many tests but all were negative atlast they suggested me to take muscle biopsy and it found as Chronic polymyositis and they given me prednisone and some physio exercises but day by day my muscle got weak and I found difficulty in climbing stairs and in walking I found some difficulty so I consulted another hospital there they given imuran 50 and so on but no use..at last at the age of 26 i found difficulty to walk also without support I cannot walk and even my upper limbs got affected so I taken stem cell therapy now my weakness is constant but no improvement ..I cannot able to do my routine work..can you please suggest me is there any improvement in my disease and also ready to take treatment in your hospital..kindly help me through this
Regards
Rama G

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