Ostomy: Adapting to life after colostomy, ileostomy or urostomy
It takes time to become comfortable with an ostomy — a surgically created opening in your abdomen that allows waste or urine to leave your body.
Many questions may run through your mind as you practice good ostomy care and live your life. It can help to talk to others who have been there. Perhaps you'd like to ask others questions like: What can I eat? What about leaks? Can I go back to work after colostomy? Can I ride a bike with an ileostomy? Will everyone figure out I've had urostomy surgery just by looking at me? What about intimacy?
Welcome ostomates. Let's talk frankly about living with an ostomy. Why not start by introducing yourself? What type of ostomy do you have? How's it going?
Interested in more discussions like this? Go to the Ostomy & J-Pouch Support Group.
Connect

Thank you for your reply. Are you able to swim and maintain good seal? If so what supplier do you use? Online or in store purchase? Trying to prepare mentally and financially
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1 ReactionWow- 3 liters of water you must drink non stop? Scary and sorry to hear you lost a kidney.
Does the bag stay on if in the pool an hour or more? I love to swim and that would be life changing to give up. I am sure suppliers tell you it works just want to know from someone who really swims with ostomy the truth. And I have super sensitive skin, could never tolerate any adhesives. Always need to wrap wounds with Ace & bandages. So not sure if I’d tolerate a bag adhesive. It’s giving me nightmares as I’ve had sling breakdown with any bandages
Skin breakdown
I use convatec 2 piece had use a belt to hold the bag on Buy my supplies at a store
I use coloplast extended wear wafers, they hold up.
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1 ReactionColoplast convex extended wear wafer. I buy through Cardinal Health (Edgepark Medical Supplies). They send supplies to my home.
I need to drink that much to keep my new kidney healthy.
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1 ReactionI'd love to be able to drink endlessly as you seem to be able to, but my colostomy came about one month before my inability to pee on my own. Now it's all with self-cathing stuff one way or other. And if I don't quit taking in liquid before supper, I'll be up all night...or should I say at this point my husband, helping me to pee. I'm fairly useless at night. Not to mention almost 83 years old.
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1 ReactionYou might also wish to see these discussions and blog posts:
- Swimming with ostomy: Any recommendations?
https://connect.mayoclinic.org/discussion/swimming-with-ostomy/
- Swimming Melted the Brava ostomy protective seal
https://connect.mayoclinic.org/discussion/melted-bravo-protective-seal/
- Exercising with an ostomy
https://connect.mayoclinic.org/blog/ostomy/newsfeed-post/exercising-with-an-ostomy/
- Swimming with an Ostomy
https://connect.mayoclinic.org/blog/ostomy/newsfeed-post/swimming-with-an-ostomy/
- Patient Story: Traveling the World
https://connect.mayoclinic.org/blog/ostomy/newsfeed-post/patient-story-traveling-the-world/
When will you get your ostomy?
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1 ReactionFriday night I ended up in the hospital with a full blown UTI and they installed a Foley catheter in me. Today is Monday....the UTI is still there but not as bad. I guess that changes my relationship to drinking liquids for the time being. I wish I felt good about it, but I'm just miserable with my first ever UTI. I'm still useless at night and my husband's back still hurts (we are in our 80s), but at least some of it has changed, and with luck for the better.