To start generic Fosamax soon and very concerned!

Posted by pattitoo @pattitoo, Apr 28, 2019

What can anyone share about their Osteoporosis meds......I have consulted with 2 Orthopods, GP, Dentist and Chiropractor. All feel I should try the med.
I am reluctant for some reason, know several that took one dose of their med and had side affects. I was going to start tomorrow morning, Have some busy weeks, in a quandary to say the least.
All 4 DEXA scans were requested by me, only the last one is in the Osteoporosis level.-- 2019 T SCORE -2.7 --in 2014 was -2.3 (what are Z scores?)
Z scores show also.
Please share your experiences with us if you want, the information will be helpful and appreciated by all..
For several years I have taken Vitamin D and Calcium.
I am almost 77 and live alone.. My weight is good, lost less that one inch in height.
Doing my best to be optimistic.
Thanking each of you for input you care to share.

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@fessenbeck65

Do not take Fosamax more than 2 years without taking a break. Because now they are finding out that long term Fosamax use causes very brittle bones. Even if your bone density is normal. I took Fosamax X 6 yrs at age 35, my bones were severe osteoporosis (my bones were the age of a 76-yr old). Now my bones r very brittle. I have had 4 fractures in 3 yrs. This info is from my bone Dr.

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Oh, my endocrinologist says to take it for 5 years. This is concerning. I have been taking it for three years at this time.

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@mlwh

Z-scores compare you to a woman your age. T-Scores compare you to a woman between 25-30 years of age, at what is usually peak BMD. It used to be specifically a white woman, and I don't know if that is the case anymore. Doctors only use T-scores in diagnosing Osteoporosis. The good thing about oral Fosamax is, if you experience side effects, you can stop. I had horrible heartburn but had GERD to begin with, (with an upper esophageal sphincter that has been described as "flapping in the breeze") so it was not unexpected. I quit after the first dose, and still had some mild improvement and stabilization in my T-Scores 2 years later.

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I agree there is a distinct advantage that you can stop taking oral (Fosamax) osteoporosis meds in case you experience side effects. When considering which osteoporosis drug you may want to try, research which ones can be stopped and those where once you start taking them you will need to stay on some type of osteoporosis drug permanently.

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After about a month of generic Fosamax 1x/weekly, no side effects at all. I've taken 4000 IU of Vitamin D and 1000mg of Calcium daily.

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Hello, I am now 80 years old. Active, eat well, exercise daily. I am at a loss why my osteoporosis is getting worse. I made several falls the past few years without breaking anything. But my numbers are much worse than yours: minus 3.8 for spine and minus 3.2 for hips. I have resisted medication for years. But the endocrinologist convinced me this time. I did not want to take Prolia since my sister had a bad experience with her jaw. The doctor informed me that Prolia has a higher incidence with jaw problems than oral medication. I started Risedronate one month ago and have not had any side effects. I follow the rules very very carefully. Like drinking lots of water with it on an empty stomach, staying upright for half an hour, delaying any other medication etc. . So far so good. Good luck!!!

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@me49

Patitoo
Be sure to investigate what happens if you try to go off Prolia. Ask your doctor how to go off safely should you experience side effects. Patients have reported multiple spinal fractures after stopping or delaying injections.

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I was 'supposed' to begin Prolia injections but decided Not to - After I paid $300. for the Injection & brought it home. From leaflet and internet info I learned you have an incredibly High chance of future bone issues-cracks, breaks - when you stop taking Prolia. I wish my own Dr. who prescribed it had warned me-before I wasted $300.

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Unfortunately, doctors don't let patients know about side effects. They follow 'standard of care' when prescribing these medications. Patients now have to do their own research to determine whether they are willing to accept the risk of serious side effects. These side effects occur in a small percentage of people, but I don't want to be one of the unlucky ones.

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I was on Fosamax for three months and then had to stop taking it while I had an emergency surgery and was hospitalized for two weeks. I felt uneasy taking it in the first place because I read about the side effects, and decided not to restart the medication when I got home from the hospital. Doctor wanted to start me on Prolia, but once again, the side effects scared me. I am already on a lot of meds following my stem cell transplant, so I am careful about any other medication that doctors want to add. I focus on taking calcium, consuming dairy and walking 4-5 miles per day. I am also cautious about what exercises I do that may affect my back - that’s where my osteoporosis is.

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@alive

I was on Fosamax for three months and then had to stop taking it while I had an emergency surgery and was hospitalized for two weeks. I felt uneasy taking it in the first place because I read about the side effects, and decided not to restart the medication when I got home from the hospital. Doctor wanted to start me on Prolia, but once again, the side effects scared me. I am already on a lot of meds following my stem cell transplant, so I am careful about any other medication that doctors want to add. I focus on taking calcium, consuming dairy and walking 4-5 miles per day. I am also cautious about what exercises I do that may affect my back - that’s where my osteoporosis is.

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Instead of taking the 70 mg of fosomax, I asked my doctor to give me a 35 mg dose since I was concerned about side effects.

I take 500 mg of calcium in the evening per my endocrinologist, and 1000 of D during the day. I get enough calcium through my diet, and I am vegan.

I am told I will be on the fosomax for five years. My bone scans are improving, spine is now at osteopenia level and right hip is almost at osteopenia.

I work with a trainer twice a week doing a weight workout. Since I’ve always been a walker/runner, cyclist and ended up with osteoporosis I think the weight workout is going to benefit me more. This is my experience with the bone journey as I age. Am now 71. Have lost over an inch in height. Would like that back. My pants are all too long -:)

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@alive

I was on Fosamax for three months and then had to stop taking it while I had an emergency surgery and was hospitalized for two weeks. I felt uneasy taking it in the first place because I read about the side effects, and decided not to restart the medication when I got home from the hospital. Doctor wanted to start me on Prolia, but once again, the side effects scared me. I am already on a lot of meds following my stem cell transplant, so I am careful about any other medication that doctors want to add. I focus on taking calcium, consuming dairy and walking 4-5 miles per day. I am also cautious about what exercises I do that may affect my back - that’s where my osteoporosis is.

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I have been researching osteoporosis drugs since I just had an MRI that shows cracks at L1 and L2. My doctor and I had discussion about Fosamax and Prolia. He wants me on Prolia.
I just finished a 7 day short course about exercise for osteoporosis. Margaret Martin is a Physiotherapist from Canada. She teaches appropriate exercises for osteoporosis. You can find her at http://www.melioguide.com. I also bought her book, "Exercise for Better Bones." (Amazon, $15) The book has three different levels of exercise depending on how active you are currently.
I'm 82, seeing a Neurosurgeon later this month, trying to determine where my pain is originating. I am leaning towards Prolia.
I wish you well on your journey!

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@murp

Hi Patitoo,
I too started Fosamax this first quarter and have experienced gastrointestinal side effects, heartburn, upset stomach and general overall malaise. So, I only took it for about six weeks. My doctor then switched me to ProLia by injection every six months. I filled the script and put the Prolia in the refrigerator as instructed. I then did some more research and read the extensive list of side effects reported by other users.It was then that I spoke with my sister, a natural medicine Shamen. She recommended trying a combination of vitamin d3 5000 iu, Juvenente, Strontium caps 750 mg,, and Bone Up brand calcium compound 5000 mg until my next DEXA Scan in September. So, that's what I doing now.If I don't have a significant improvement by then, I will reconsider the Prolia solution, ProLia keeps in the refrigerator for about two years so it will still be usable until the Fall. It's about a 65 dollar copay on my insurance, but at twice a year its not too bad. I hope it proves effective as the list side effect is daunting.
Good luck with whatever path you choose,
Chris

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I am recovering from two broken hips, they were 45 days apart. I'm taking calcium, magnesium and D3, also Fosamax. So far, so good. However, I would like to find a magnesium that didn't cause loose stools, and is absorbed well.

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