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Is Camzyos effective long term?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (48)
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@jaymaysea

Hi @par4rosy. Reach out to your cardiologist. I have been on 5mg of Camzyos since last June 2023. My dosage was lowered to 2.5mg for a month but after pushing my cardiologist to do a stress echo I was returned to 5mg. My obstruction is only significant upon excretion. Consequently, I was misdiagnosed for years.

My echos show that my gradient has improved; but, my symptoms — shortness of breath — upon exertion have persisted. I have not experienced the kind of symptom relief that some of the others in our group have had. But I am encouraged that my gradient has improved.

I am scheduled to see a new cardologist next month. Perhaps he can help address why my symptoms have persisted.

Hang in there. Don’t get discouraged! Have faith. Ask questions and push for answers.

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Replies to "Hi @par4rosy. Reach out to your cardiologist. I have been on 5mg of Camzyos since last..."
mpjg | @mpjg | Nov 26 2:21pm

Thanks for this post jaymaysea. I was started on 5 mg Camzyos in August and had significant symptom relief. But my gradient came down too much too fast and they reduced my dose to 2.5 mg. Since then I have been experiencing chest tightness and breathing difficulties on exertion but my Camzyos protocol echos indicated my gradient was just fine. Because of your post, I thought to ask for a stress echo which lo and behold showed that my gradient significantly increased upon exertion. I have now been returned to 5 mg and hopefully that will alleviate the exertional symptoms.

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