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Does anyone else have AML with ddx41 genetic mutation?

Blood Cancers & Disorders | Last Active: Mar 10 11:33am | Replies (9)
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@loribmt

Hi @fortuitous and welcome to Connect. AML loves to present us with challenges, that’s for sure. I had 3 mutations associated with mine which left me no choice but to have a transplant.
The ddx41 is a mutation I’m not familar with. Did your doctor feel there would not be a positive outcome with the transplant?

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Replies to "Hi @fortuitous and welcome to Connect. AML loves to present us with challenges, that’s for sure...."
fortuitous | @fortuitous | Mar 9 2:19pm

HiLori,Yes they warned me that with my age(74)and my generally decent health a transplant would be quite riskey.The hematologist oncology team at the university of Chicago sent me to mayo to meet with an aml specialist who advised us that I had a lot better chance at survival without the transplant..We are going to make another visit to mayo in May hopefully to meet with the same doctor.

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