Hello, I’m new to this forum and I’m hoping to connect with others that deal with neuropathy pain jolting them awake in the middle of the night. It hurts so bad I’m terrified to move but I know I have to. I have many medical issues which don’t help. I had chemotherapy in 2015 for breast cancer and radiation in 2016. Had to deal with all the side effects of taking chemo drugs, tamoxifen for 5 hrs then letrozole for 3 yrs when I finally told my Onocologist NO MORE! I was tired of the side effects. My neuropathy started around 2016 and I have been fighting with it since then. It has progressed and gotten worse over the years so has my health. In 2020 I was diagnosed with RA so I started meds for that (plaqunil, celebrex and recently Humira injections). In 2023, I had heart failure and had a pacemaker put in. Plus I’m a long term depression and anxiety patient. I am also according to my cardiologist “morbidly obese. My neuropathy had been minimal (pain wise) all those yrs until February 2024. I’ll be sleeping soundly (I’m a back sleeper ), when all of the sudden I’m jolted awake with pin and needle sensations and deep burning pain in my right thigh. It takes me 5-10 minutes to maneuver myself out of bed. Then I walk around to ease the pain, but it lingers for a few hours. I’m on 100mg 3 times a day of pregabilin (lyrica); it is not helping. I manage to get approximately 5-6 hours of sleep due to this. Please I’m interested in anyone else that has this jolting night waking pain. What helps? How do I get myself out of bed easier?
Thank you
ginlou65