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Immune Thrombocytopenia Purpura (ITP): What helps?

Blood Cancers & Disorders | Last Active: Mar 19 5:50am | Replies (155)
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@nabravo

Hello @jimmyb63,

I'm new to this board and I'm highly interested in your story. How are you doing today, hope you have overcome it and all is good.
My girlfriend is now in hospital since ~ 7weeks. Similar case like you. None of the treatments result in increasing platelets. They started two weeks ago with NPLate and increased the dose now to maximum, but no improvements. Platelets still down on 1000, in add, they immaturity platelets disappeared too.
With all the tests ( bone marrow puncture, endless blood tests, ...) they found out mastocytosis but shouldn't have any correlation to ITP they stated.

Maybe you can share your experiences.

Many thanks in advance,
Oliver

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Replies to "Hello @jimmyb63, I'm new to this board and I'm highly interested in your story. How are..."
jimmyb63 | @jimmyb63 | Mar 8 4:39am

Hi Oliver, have they tested her for HPylori? Treatments did not work because of Hpylori. Please Google search ITP and HPylori. It takes 2 antibiotics taken together to treat it. There are two tests they can use a breath test or stool sample test. However you can’t be on anything like Prylosec or even Pepto Bismol for two weeks prior to taking the breath test or you may get a false negative. I do not know if its the same for the stool sample test. Many doctors do not know about the correlation between ITP and HPylori, please research it there is definitely a correlation. Took 3 weeks to convince a doctor to do the test. After 4 days on antibiotics platelets started to rise and very quickly.

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