@swagner2024 — my heart goes out to you. I am acutely aware of the feelings of fear and overwhelm as I also have high grade ESS, diagnosed late last fall. Though we knew after my hysterectomy that the tumor was sarcoma, the final pathology report took 4+ weeks for me also. What a long time to wait! In my case (Stage 1b) the protocol is no chemo or radiation and I am now in surveillance with a CT scan every three months.

I am glad to hear you are going to the Mayo. One of the best things I did after my diagnosis was have a consult with a gynecological oncologist familiar with uterine sarcomas. This person answered many questions and filled in gaps in my knowledge. It’s so hard to find good information with such a rare cancer!

My thoughts are with you. Please update us when you know more if you feel comfortable doing so.