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Papillary Thyroid Cancer: Any experiences to share?

Thyroid Cancer | Last Active: 10 hours ago | Replies (21)

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@namwob87

Papillary Thyroid Cancer symptoms
I was diagnosed on the 14th with thyroid a cancer after having a nodule biopsy. Am currently working to get an appointment with a thyroid surgeon. Over the past year I have been having A LOT of what would be considered hypothyroid symptoms but my t4 and t3 levels always come back normal. I was just wondering if anyone else had similar experiences. (Female, 36)

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Replies to "Papillary Thyroid Cancer symptoms I was diagnosed on the 14th with thyroid a cancer after having..."

Hi
I had thyroid surgery several weeks ago to remove right thyroid folowing byopsy that showed 80% probability of cancer. I'm recovering with no side effects except 3 inch incision on nech. I go back in another month for blood work to see if I will need to be on medication going forward. I'd be happy to answer any questions I can?
Don

Hi Don,

I'm going through the VA so I feel like the information I get is kind of...muddled. The endocrinologist is in a hurry to get me referred to a specialist, but I'm still in the process of that. She was kind of vague on whether the cancer is the cause of my symptoms other than the fatigue. The only reason I was even diagnosed is because I went to the ER for chest pain in December (unrelated issue) and found a nodule on my thyroid when they did a CT scan.

@namwob87, I'd like to add my welcome and introduce you to other members who have experienc with papillary thyroid cancer and who can share the symptoms that led to their diagnosis, like @lilyann @roya81 @xyzck88 @koh and others.

@namwob87, have you been able to get an appointment with a surgeon in the meantime? How are you doing?

My previous Thyroid tests came back normal as well. They found my nodule in a CT scan by accident. Had a Total Thyroidectomy and central neck disection last December. They found thyroiditis and metastasis in two lymph nodes, parathyroid and other lobe. Glad they found it. My tumor markers jumped last month and I have another nodule. Waiting to see when right neck dissection will be scheduled. Have had hypothyroid symptoms for over five years. I don't think they do enough investigating and insurance doesn't want to do more than t3 and t4 if they appear normal. I had put on 80 lbs in those five years and was very careful with my diet. My endocrinologist put me on zepbound and I am down about 38 lbs. I also am on higher dose of Thyroid meds due to cancer (for up to two years). The weight loss should also help energy level. I hope to get to stay on zepbound. I hope this was helpful.
56yr old female