@klschepp Welcome to Mayo Clinic Connect! I certainly hope that you will find the help here that you need. You are in a very difficult situation and insurance only wants to make it more difficult. I had the same problem when a doctor ordered rituximab. It was denied but the doctor persisted. I was finally given the OK and the drug company, Genentech, paid for it out of their charity fund. You might check with the drug company to see if they have some funds for patients who can’t afford their prices. The next time it was denied because the coding was wrong.
I’m sure you will hear from members soon.
If I may ask, how did you find Mayo Connect?