1. < Skin Health

I have Lichen Planopilaris

Posted by shooter @shooter, Mar 25, 2016

I have Lichen Planopilaris. Could the use of Red Lead Paint, Zinc Chromate and Acetone cause this issue of Lichen Planopilaris? I was in the US Coast Guard and these toxic metals were chemicals were used on the bottoms of boats and marker Buoys.

Interested in more discussions like this? Go to the Skin Health Support Group.

siroisjli | @siroisjli | Aug 28, 2021

it is frustrating, be healthy and take care.

REPLY
bustrbrwn22 | @bustrbrwn22 | Sep 5, 2021
In reply to @balancedco "Hi Virginiae. I too have been diagnosed with lichen planopilaris a few months ago. The dermatologist..." + (show)
@balancedco

Hi Virginiae. I too have been diagnosed with lichen planopilaris a few months ago. The dermatologist prescribed doxycycline but that caused blurring vision and I had to discontinue. She then suggested that I take plaquenil which is used as a treatment for malaria. I talked to several other doctors who say that this drug has a lot of side effects. I decided to put off taking it. The disease is causing hair loss with a red, painful and itchy scalp. It's also affecting the lymph nodes in my neck, which is very painful. Last year I took 4 rounds of antibiotics to cure a tooth infection and I was wondering if that may have weakened my body to the point where I got this disease. I saw a specialist in functional medicine who ordered a complete blood and dna stool panel. He said that it's possible with all the antibiotics and stress last year that I may have flipped a genetic switch that brought on this inflammatory disease. I'm waiting for the test results which include inflammatory markers in my blood and gut, toxins, bacteria, parasites, thyroid, iron, hormones, etc. Hopefully this will give us a path for treatment. I agree that this is very depressing....

Jump to this post

Is there another term for a specialist in functional medicine?

REPLY
1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 6, 2021
In reply to @bustrbrwn22 "Is there another term for a specialist in functional medicine?" + (show)
@bustrbrwn22

Is there another term for a specialist in functional medicine?

Jump to this post

I believe sometimes functional medicine and integrative medicine are used interchangeably. There are several articles on the internet that help explain the similarities and differences. Here's one example
- What’s The Difference Between Functional & Integrative Medicine? https://www.balancedwellbeinghealthcare.com/whats-the-difference-between-functional-integrative-medicine/

REPLY
carolee888 | @carolee888 | Apr 14, 2022
In reply to @ethanmcconkey "Hi @kherman and welcome to Connect! I wanted to introduce you to Connect members @beryl @lima..." + (show)
@ethanmcconkey

Hi @kherman and welcome to Connect!

I wanted to introduce you to Connect members @beryl @lima and @loli as they may be able to offer support and what they've learned in their experiences with lichen planopilaris.

@kherman, when were you diagnosed with lichen planopilaris? How has it been treated thus far?

Jump to this post

I was diagnosed on 4/12/22 and prescribed Betamethasone Dipropiate ointment. I am frightted about it. I have RA Hashitomo's thyroiditis, sjorgren's. syndrome, eczema, nodular prutigo, and had psoriasis.

REPLY
maralina | @maralina | Jan 15 6:38am
In reply to @balancedco "Hi Virginiae. I too have been diagnosed with lichen planopilaris a few months ago. The dermatologist..." + (show)
@balancedco

Hi Virginiae. I too have been diagnosed with lichen planopilaris a few months ago. The dermatologist prescribed doxycycline but that caused blurring vision and I had to discontinue. She then suggested that I take plaquenil which is used as a treatment for malaria. I talked to several other doctors who say that this drug has a lot of side effects. I decided to put off taking it. The disease is causing hair loss with a red, painful and itchy scalp. It's also affecting the lymph nodes in my neck, which is very painful. Last year I took 4 rounds of antibiotics to cure a tooth infection and I was wondering if that may have weakened my body to the point where I got this disease. I saw a specialist in functional medicine who ordered a complete blood and dna stool panel. He said that it's possible with all the antibiotics and stress last year that I may have flipped a genetic switch that brought on this inflammatory disease. I'm waiting for the test results which include inflammatory markers in my blood and gut, toxins, bacteria, parasites, thyroid, iron, hormones, etc. Hopefully this will give us a path for treatment. I agree that this is very depressing....

Jump to this post

I’m
Not sure how to start a new comment thread

Was just diagnosed with LPP - is using hair dye a problem? Thx

REPLY
1 reply
maralina | @maralina | Jan 15 6:39am

I was just diagnosed with LPP is using hair dye a problem? Thanks

REPLY
808style | @808style | Jan 27 1:12pm
In reply to @maralina "I’m Not sure how to start a new comment thread Was just diagnosed with LPP -..." + (show)
@maralina

I’m
Not sure how to start a new comment thread

Was just diagnosed with LPP - is using hair dye a problem? Thx

Jump to this post

Hi @maralina - you want to avoid anything that will irritate or inflame your scalp. I was diagnosed with LPP back in October, 2023. I have had two rounds of cortisone shots in my scalp, use a red light dome cap 2x a week, gone on a low histamine diet, started acupuncture once a week, use minoxidil 5% liquid once a day and a steroid liquid 2x a day. I have quite a bit of new hair coming in and my doctor is very pleased with my progress. The low histamine diet has helped significantly with reducing the inflammation and itching. I did notice a new patch of scaling on a front section of my scalp...which is very frustrating. I may go back to the doctor to ask them to give me a low dose steroid shot in that spot to try and get it to stop. Other than that, I don't have any other solution. I am going to try tai chi soon to see if that helps with stress. At the end of June I have my first appt with the hair loss clinic at Stanford. Hoping they can provide me with other effective options to stop the progression.
Hope this information helps.

REPLY
klschepp | @klschepp | Mar 7 11:42am

I have been reading various posts and am finding it interesting that several people have irregular thyroid tests as well as LP. Does anyone know if there is a connection to the L P and irregular test results of thyroid? My thyroid tests show I have hyperthyroidism BUT all my symptoms are those of hypothyroidism. I made an appointment with an endocrinologist but it is going to take months to get in to see him. Thoughts?

REPLY
View MoreView Less
Please sign in or register to post a reply.