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Patty:
You are kind to always respond, and I recognize I could be more focused on gratitude and the positive direction things seem to be going.
Part of my persistence in researching this is hoping to be as healthy as possible for as long as I can.
I think the turmeric/curcumin supplements may be helping, and I wouldn’t have known about trying that if I hadn’t done my own research.
I also wonder ( and this is controversial!) what role the mRNA vaccine had in this. I believe in the benefits of vaccines- I even spent a few weeks volunteering to give shots for the County Medical Association during the pandemic, partly to get mine a little early. ( was an RN for my first career) I don’t think anyone was conspiring, and it ended the worst of the pandemic thankfully!
But for a few susceptible individuals it may have triggered autoimmune disorders, kidney inflammation and/or nephrotic syndrome and plasma cell dycrasias.
There are a few studies just now being released online that the public can access that suggest this. I also have a family history of autoimmune disease as well as myself.
I don’t understand what “small peaks in several lanes” means. My doctor drew the SPEP for normal, and for MGUS. It’s a distinct sharp spike that indicates a monoclonal gammopathy. I don’t have that - just several little bumps in gamma area.. He was frankly baffled and said the only way to know is to do another BMB and it wasn’t warranted.
I’ve had significant fatigue, dizziness, and frankly some depression the past 2 years which has been slowly resolving. Trying to look forward now.
I appreciate this supportive group very much and wish you the best! 🥹
Replies to "Patty: You are kind to always respond, and I recognize I could be more focused on..."
@leslie2121 I personally wouldn't look at the result of one set of labs as a concern. Look at the trend. You mentioned you will go back in 6 months. If there is any reason you don't feel comfortable with that, ask to be seen at three months.
And, as Patty @pmm mentioned, stick with your hematologist/oncologist, please. They are better educated and better equipped to address concerns that may arise, and "catch" a change.
Good to hear that fatigue, dizziness, depression seems to be lifting for you. There can be many small reasons for these symptoms, that come together and can create a larger presence. What can you think of that has helped you get over these hurdles? Diet change? More/different exercises? Mindful work to address the issues? Just curious, and it might help others!
Ginger
@leslie2121 - you said, "But for a few susceptible individuals [the mRNA vaccine] may have triggered autoimmune disorders, kidney inflammation and/or nephrotic syndrome and plasma cell dycrasias. There are a few studies just now being released online that the public can access that suggest this."
Do you have the link(s) to those studies? TIA.
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@leslie2121
I admire your dedication to the examination of cause and effect in your journey. I definitely view that as positivity.
I always learn from the experience of others as we are all so different yet we walk a similar path.
Thank you for your thought of possible connections. I will definitely look for the studies.
Was there anything in particular that you can share that you believe helped to resolve that depression and dizziness?