Relapsing MS since 2011. Need input....can't travel.

Posted by ribkauh @ribkauh, May 15, 2016

I try to find blessings in life...I do, I use to take care of others ..anymore my motto is "I haven't given up, my body has given out".Since 2011 Drs said I have remitting relapsing MS. My husband helps a lot even thou he has lots of health issues himself. I've noticed marked weakness , so soon I'm starting a program to help..I walk very slow with a walker..I'm 52 been married nine years,worked since I was 14 and before helping where needed...My life is way too surreal now, I use to be a CNA that helped people with all kinds of disabilities....which I enjoyed making life better for them...But as I recall home health aides and private duty cna's (which I was both) work was very hard and back then didn't pay much, but very personally rewarding for me So thank you for reading my 'whine-ing' Here are a few of my medical probs, fractured shoulder, other fore arm carpal tunnel, both hands very limited use,(plus numbness over most of body, to the point where I can't feel if I have an infection) eyesight dimming , and the icing?..I'm bipolar living with the inability to sleep...always had this issue...ok ...so hello and again thank you, folks get blest in many different ways....I'm just very uninspired with this broken-down body cuz the out-look is grim ...There are folks that have it worse, I am thankful for what I can do have ,but I think a lot about donating my body to science which is something that can help many people

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Alyse Brunella | @alysebrunella | May 15, 2016

Hi @ribkauh, and welcome to Connect. Thanks for sharing your journey with us. I found some information from Mayo Clinic - 3 Ways to Live Well with MS that I think you may find helpful (https://connect.mayoclinic.org/discussion/live-well-with-ms/). I'm tagging @stacy36 and @anisha1232 - two members who also have been discussing managing their lives with MS.

Would you mind explaining a bit more about the program you mentioned? This may help other members who may be experiencing similar symptoms.

Vickie | @vickiekay | May 16, 2016

PLEASE go to Amazon.com and order a book entitled "Why Can't I Get Better?" by Richard Horowitz, M.D. This book discusses MS, RA, ALS....and other diseases. After living with and treating my diagnosis of rheumatoid arthritis for 26 years at Mayo, this book has changed my life to the positive. PLEASE READ IT....the suggestions for treatment of MS are mostly supplements. Also, find a functional/integrative MD who will test you for Lyme Disease with an IGeneX Lyme test (NOT a CDC Lyme test!!!!).....I promise from experience that you can get better. Best wishes...

Kay | @irvkay312 | May 16, 2016

Hi, Althopugh I don't have MS or the items you spoke of, I faced neurological problems all my life, until cancer came. The point is, "yes, I always tried to help people learn how to cope with epilepsy and migraines, even though I didn't drive." I did it on the internet, so as to relay my experiences in dealing with these things and help others; while at the same time "I saved a lot of physical energy that I had lost over the years and did this at my pace, not giving up--but conserving my energy for times I would be most apt to need it." Your input to many today is a valuable tool to help them learn to live with the aspects you went through. Keep it up. Good Luck. Kay

Please sign in or register to post a reply.