I was diagnosed with LP in 2020, but have been dealing with this disease much longer. By the time I was diagnosed I had no finger nails on my right hand and most of my toenails were gone too. My feet had blisters and lesions and the typical "lacing" especially on my feet. The condition always gets bad in the winter months but this year was especially bad.
My dermatologist tried the JAK inhibitor, Cibinco (spelling? ) and after 6 weeks I saw some improvement. The Dr tried to get my insurance company to approve this drug for me but it was declined. All the progess that had been made to that time reversed and my condition became worse. The Dr tried to get pre authorization for Renvoq and it was initially declined.
Before starting the JAK inhibitors I had blood tests taken. At the end of the 6 weeks of Cibinco my cholesterol jumped 50 points and my white blood cells plummeted.
The costs of both drugs ($10,500 for 30 days of Cibinco and $6700 for 30 days of Renvoq) were offset by the drug companies savings program. My monthly copay for Renvoq is $5. But there are also programs through the drug companies where you can get a $15,000 voucher to offset the costs of the drug.
I went to another dermatologist and he gave me an additional diagnosis of atopic dermatitis in addition to the LP that is now in my mouth.
Has anyone else been prescribed this course of drugs to help with LP? I am 74 and the Dr said Renvoq is typically prescribed for patients 45 and under. Thank you