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Feeding tube patients: What's your experience?

Esophageal Cancer | Last Active: Jul 24 3:53pm | Replies (45)

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@aheid

First of all, congratulations to your hubby. The reason, I believe, that the sight or smell of food, etc., that your husband was experiencing is because during this type of operation, the vagus nerve is severed—so you no longer feel full nor hungry.

Yes, our pump is detachable and rechargeable and he does have the backpack (although he hasn't chosen to use it yet). Formula overnight would be the best solution but it causes nausea. As I said, we break it up. Yes, the Boost is by mouth and it's worth 530 calories. He does take Ondansetron, as well as Prochlorperazine, both of which offer minimum relief of nausea.

After his first session with the hypnotherapist he had an entire yogurt by mouth (usually he'd have one spoonful and that would be it for him. He also ate about 80% of both a scrambled and one piece of bacon—all without nausea. I feel that we've finally turned a corner but it's going to be a while yet until we can talk about getting his tube removed.

Thank you for all your suggestions and congratulations and best of luck to your husband.

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Replies to "First of all, congratulations to your hubby. The reason, I believe, that the sight or smell..."

Thank you! My husband did not have the surgery, he is stage 2 and 82 yrs old. He chose to do chemo/radiation only and had a very hard time at that. Upcoming PET in 2 weeks will tell whether foregoing surgery is wise.....or not. The Ondansedron offered minimum relief here too and I vetoed using Prochlorperazine after trying it for 3 days with no relief because it is a mind altering drug and he was on a substantial dose of Fentanyl patches which is also mind altering. Last thing, I would suggest you experiment with trying the speed of mL/hr to be 2 hours per carton. We are all trying our best to make this journey a little easier for our hubbies but it is a tough journey! Warm wishes to you both!