I have keterconus...

Posted by 332664utc @332664utc, Mar 5 5:06pm

Hello. I'm new to this platform, exciting to read and learn everyone's stories.
I was diagnosed with keratoconus 10+ yrs ago. Eye doctor visits aren't the best time for me 🙁 but I just learned there is a new function O.D. are using is their office called CLARIFYE is a state-of-the-art digital eye exam experience that PRICISELY measures for a 100% outc9ne of contact lenses prescription. I have an appointment soon, hopefully this will work..... I've had very disappointing pasted appointments. Hope to year your feedback!!!

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pb50 | @pb50 | Mar 5 7:29pm

My daughter and her daughter have this.

332664utc | @332664utc | Mar 6 7:59am

In reply to @pb50 "My daughter and her daughter have this." + (show)

Hi. What have they done or currently doing to deal with condition ?

pb50 | @pb50 | Mar 6 8:27am

I need to ask them where they are with treatment. I’m not sure. I know my daughter can’t drive because she can’t pass the visual exam. She went to a big hospital ophthalmology practice and had special Contacts for a long time but I think has stopped that. and my granddaughter was only recently diagnosed.

332664utc | @332664utc | Mar 7 7:20am

In reply to @pb50 "I need to ask them where they are with treatment. I’m not sure. I know my..." + (show)

Crazy that it sounds, but statistically states our condition is very rare. And coincidently you say your daughter can't pass visual exam.... few weeks back I happened to be looking at my driver license and noticed renewal time coming up soon. Then I saw something else I've never seen or just not ever paid any attention to but it had a Code: B .....thinking what's this?? I Google for within my State and surprisingly it meant " corrective lenses".....so for 8+ yrs this coding has been on ID. I do were corrective "special" contact lenses but how did THEY know, don't remember ever disclosing information. Anyways, tell her to wear her contact lenses to hopefully pass eye exam- wish her luck!!