I just saw your post while searching for immune deficiency. A really great site is The Immune Deficient Foundation, as they have an abundance of materials related to being immune deficient. They are also having a conference in Chicago in June, and they are still accepting applications for scholarships. I filled out an application months ago for a scholarship, totally forgot about it until I received a message that I had been granted one for all of my travel expenses to the conference. The Foundation is a terrific non profit, and like this platform you can join discussions with others who are immune deficient. I have my first appointment with an immunologist coming up in a couple of weeks, and the information I gathered from the Foundation has given me a wealth of knowledge. I encourage you to check it out. Here is the linkhttps://primaryimmune.org/

They offer monthly zoom meetings in different parts of the country so that patients can connect with each other. I have signed up for the N. California one that is coming up around March 20 2024. Check it out. I think you will be mildly surprised.