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HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: Nov 28 11:57am | Replies (877)
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@bwburchette

I am new to Mayo Clinic Connect. Just diagnosed with HOCM last summer. Actually had first visit to Mayo last week. Very impressed and pleased with care I received. I am actually scheduled to return for septal myectomy March 27th. Naturally, I am a bit apprehensive, but I know I will be in good hands. I have been reading entries from HCM patients over past few months and have found it very comforting to know others are going through a similar problem. Thank you for providing a forum for patient support!

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Replies to "I am new to Mayo Clinic Connect. Just diagnosed with HOCM last summer. Actually had first..."
Debra, Volunteer Mentor | @karukgirl | Mar 5 7:59pm

Welcome to Mayo Connect @bwburchette.
I am so glad you found this site and so happy to hear you have found comfort here on Connect too.
I think I understand how you may feel, because I felt the same way just before my septal myectomy at Mayo/Rochester. I felt like I was alone. I didn't know anybody with HOCM. I honestly had never heard of it before.
Having the support of others who have this, who have gone through all the meds and tests, misdiagnosed even, and such, to get to the point of needing surgery...it's such a relief. At least you are not alone! You have a support group here on Connect!
March 27 is right around the corner. You mention that you have been reading entries here on Connect, and I hope you found some wonderful, useful information that can help you.
If you have any questions, or feel like you would like to connect with someone who went through what you are about to go through, I would love to be able to reach out and help you with any questions you may have. I'm not an expert...I only had open heart surgery. But I learned from my own experience, and some wonderful advice I got here on Connect that was super helpful.
Do you know who your surgeon is?
Are you close to Mayo? I'm assuming it is Rochester.
Do you have a good support person?

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