← Return to Restless Leg Syndrome

Discussion

Restless Leg Syndrome

Sleep Health | Last Active: Apr 1, 2023 | Replies (268)

Comment receiving replies
@suecreader

Thank you so much for taking the time to post this encouraging reply. It certainly does help to hear about your experiences, and I especially appreciated the story about the three people laughing at the diagnosis of restless legs. I’ve had that happen too, just as I have with the diagnosis of fibromyalgia. So many people, and ones who I would think have enough knowledge to not react this way have made statements indicating that they think this is a made-up condition or diagnosis. I’m glad you set those people straight and educated them. When suffering from lack of sleep it’s sometimes difficult to not be frustrated at lack of understanding of others. I was also interested to hear about your mom also having restless legs as well as you and your sisters. I am an only child, and I believe my father had them also, but there was no firm diagnosis of RLS years ago. He passed away from a heart condition when I was 28 so I’ve been inable to ask him questions about his symptoms. Ultimately though what matters is what works for us to get relief. You’re the second or third person who have mentioned vitamin D, and I am glad of the reminder so that I will ask my doctor about that also. The iron connection & taking more iron hasn’t seemed to give me much relief....interesting that she (the doctor) hasn’t suggested Vitamin D.

Jump to this post


Replies to "Thank you so much for taking the time to post this encouraging reply. It certainly does..."

@suecreader I think the MDs tend to look at drug company information and the drug companies don't make any money on Vit D.

Taking the vitamin D3 worked immediately once I found the right dose. In fact for anyone thinking of trying the D, I suggest starting at 5000 IU or MG capsules, (I can't remember how those capsules are measured) and if it works, you know you have found the missing link. If it doesn't work, you will know this is not the missing link for you. And if the 5000 works, the next night take just 4000 and see if that works. If yes, take 3000 the next night. You can always add more if you reach the point where it isn't working but it worked before. And if you want to try a higher dose, I think it is probably wise to check with and have it monitored by your MD as Vit D is not a water based vitamin and excessive amounts are not excreted.

Just as an aside, I did NOT have low Vit D before I added all of this and I don't have high Vit D now so I don't understand how the body is using it but it does work for me.

I tried iron tablets and also added red meat to my diet. That didn't help me at all.

Good luck to all you RLS sufferers and may 2019 bring a cure without any side effects.