@suecreader Hmmm, interesting as I was told I had "growing pains" when I was young. And Sue, I think your RLS is far worse than mine. My Mom had RLS and her symptoms were far worse than mine or what any of my sisters are experiencing (but we all started on the higher doses of Vit D when the RLS presented its ugly head). I am 74 and the actual RLS thing probably started about 8 to 10 years ago and the PILM more recently. The PILM isn't a problem if I don't take Benedryl or the PM drugs or more than a nibble of Ambien. Interestingly, I also have some "restless finger syndrome" in which one finger will start to move or maybe that is part of the PILM symptoms. The finger movement is just kind of interesting, not a sleep problem but I am sure it is connected.

I hope the Neupro continues to work for you and that the side effects become minimal. I think as more and more people speak up about their experiences with RLS, medical science will find a cure. But for so long, it has been minimized as unimportant. I remember three male friends laughing about restless legs and I want to tell you, I educated them on the seriousness of the condition. They were laughing at the name as it certainly doesn't convey how unpleasant and life altering the condition is to those of us who have it.